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Re: interesting dilemma

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Grant from The Parkinson Alliance


Hi, Scott,
Every day, I wake up early, feeling the effects of my PD.  Tight muscles, 
tremor, increased urge to pee, etc.  And I just thank my lucky stars.  I'm 
happy to have one more day where I can walk, shoot hoops, do my job, 
(pianist) drive, have a little fun, dig the changing weather, (Buffalo, 
NY) but most of all, I am really appreciative of my wife, who is the bee's 
knees, and my two sons, and the rest of my family.  I feel torn too, 
because there are things that I have to do, like now, if I want to do them 
at all, and yet I want to be there for my fam.  So I try to do both.  

I haven't heard much about you, but from your note I can guess that we're 
in the same boat, in the earlier years with PD and still basically able to 
function on a more or less full level.

When you're a musician, you spend a lot of time having fun.  Actually 
that's part of the reason that music is my chosen career.  It's a heck of 
a lot of fun.  And I agree with your wife's encouragements.  You go do it 
while you still can.  But I would add this:  Only if it's fulfilling to 
you.  Did you ever go do something, and when you get there, you wonder why 
you came?  In short, make the most of what you got.  It's good advice for 
anybody.  Including your wife and kids.

Don't worry about PD.  Just do your do day to day, and when you run into a 
problem, adapt.  Prepare yourself.  Bad days are ahead for you and me.  
But let that stop you from doing nothing.

I want to emphasize that.  Do let PD stop you.  But only from sitting on 
the fence.  You don't have to wait.  It'll catch up.

"Once more into the breach, dear friends."

Rick  
  ----- Original Message ----- 
  From: Scott Burnett 
  To: PARKINSN@xxxxxxxxxxxxxxxxxxxx 
  Sent: Wednesday, March 23, 2005 11:47 AM
  Subject: interesting dilemma


  I've got an interesting dilemma, which I guess I should be thankful for. 
I'd like to tqke a trip to Mexico later in the year to Puerto Vallarta and 
San Miguel de Allende. My wife Patty keeps telling me to go and stay with 
some friends down there while I feel good. Unfortunately I feel guilty 
about leaving her and the kids. I also am torn because I don't want to 
miss out on watching my boys play baseball. On the other hand I feel 
nervous that my healthy, "feeling good" days are numbered. Watching 
"Saving Milly" just made me even more anxious about the whole deal.


  Scott Burnett
  MB Multimedia
  (209)478-9328
  sburnett001@xxxxxxxxxxx

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