Re: THE HOW SURVEY/PD Comments

[Edith Love <elove59@xxxxxxxxxxx>]

Thank you, Gerry.    You, too, are there cutting brush and filling ruts in
the road to a cure.

What we all need to remember is that for our physically and mentally
unmangled survival we need the village.   No one is going to listen until
the shouting is heard and its echo reaches far and wide.
No one is going to understand this odious disease and what patients and
caregivers (especially caregivers) experience until the curtains are pulled
and the blinds are raised.

We have had unending research and millions of dollars spent; yet no one has
developed medication equal to Sinemet.  And no one ever seems to mention
QUALITY OF LIFE.

There I go on my soapbox again!  Enough!

Walk with rainbows, everyone.
   E





----- Original Message -----
From: "Gerry Haines" <Brignal1@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Saturday, November 05, 2005 4:56 AM
Subject: Re: THE HOW SURVEY


> Thanks for all you do, I know what Maxine does and she is terrific, but
not
> one really knows how much you do behind the scenes.  I just want to say
thank
> you and please know, we have remained touched at your gestures, just not
> able to give back in that vein.
> Would be happy to do survey.
> Gerry and Brig
>
>
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