Nursing Home for PWP

[Larry Wilson <dlwilson@xxxxxxxxxxxx>]

This is Larry Wilson...one more time...and I am closing.  I will not be
sending or receiving messages after this one.  And thank you to the many
that sent condolences.  I just got back from the funeral.

For those that are thinking of putting a loved one into the nursing
home...don't.

For PWP patients this has been a most frustrating experience.  My brother
John continually had "bed sores", lack of checking for his incontinence and
bowel movement, lack of exercise, lack of medical care, and just in general
lack of attention.  If it is necessary to go into the nursing home there
must be a caretaker to look after the PWP...and this must be daily for some
time....probably an hour or two a day.

Nursing homes will take you in...and promise you care...but the reality of
it is they just do not have the personnel to take care of you individually.
I really liked some of the personnel, but again, they did not have the
capacity to fully maintain John...even though they said they did.  They have
a schedule and if you don't fit their schedule they will let you just exist.
They are essentially a holding place for you.  They medicate you  on their
schedule...as the nurse goes down the hall medicating everyone - one by one
down the hall.  If you require medication that does not fit their schedule
they will eventually fix it so you fit their schedule.

Do not believe what the director says...verify it.  I hate to say it but
nursing homes are for people that are dying.  My brother died in 9 months.
The mistake I made was to agree with my sister-in-law that it was the best
thing to do to put him in a nursing home.  Wrong...in so many ways!  If the
PWP does not have a caretaker that cares then PWP loses...and with his life.

I saw physical exercise as giving him life.  They saw it as preventing
death...or immobility which is easier to take care of...for them.
I saw medicating him properly as necessary for movement and mobility.  They
saw it as a nuisance...time consuming.
I saw ..........

Larry Wilson

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