Re: Help Please with Advocacy!

[DAVID LEWIN <lewin44@xxxxxxx>]

Dear Maggie,
How much Sinemet do you take at and at what dosage?  Maybe we could
all send you "excess" medication as a backup supply to make you feel mor
secure.  David





> From: Maggie Mauney <m.mauney@xxxxxxxx>
> Reply-To: Parkinson's Information Exchange Network
> <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> Subject: Re: Help Please with Advocacy!
> Date: Tue, 18 Feb 2003 18:06:51 -0500
>
> I have just lost all of my health benefits from my employer, so I, too,
> am advocating for some type of governmental health care provisions.  I
> was diagnosed with PD last September, tho I've had symptoms for a
> couple of years.  I'm single, and only a 1-income family--and I've just
> been cut back to part-time work at my job as grocery store cashier, due
> to some health-related warnings I've received (too slow at cash
> register; not engaging enough with customers; not able to bag or carry
> heavy groceries, etc.).
>
> I will have no option except to stop taking my PD medication, Sinemet,
> sinceI can't afford to buy it without health care/prescription
> coverage.  I feel the government should make some provision for those
> of us who don't quality for public assistance programs (I am not
> eligible for medicaid and since there are no children in my household,
> don't qualify for any type of assistance).  I'm 52 years old, and it
> will be 13 years before I qualify for Medicare.  What am I to do for
> those next 13 years for health care without some type of government
> assistance?
>
> Maggie Mauney
>
>
>
> On Tuesday, February 18, 2003, at 01:56 PM, Meg Duggan wrote:
>
> > Hello - We would like to print a "form" letter in our newsletter that
> > people
> > can copy or clip out and send to their state and/or federal
> > representatives.
> > We would like to begin to advocate for some type of fall-back major
> > medical
> > coverage for people who have already been dxd with PD.  We are in a
> > farm
> > state and more than one insurer has pulled out of the entire area,
> > leaving
> > long time customers uninsured; many unable to afford to go into the
> > existing
> > state pools.  Can anyone give us some ideas for this letter?  I am not
> > really
> > sure what I am asking for!  Thanks, Meg
> >
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