Re: Help Please with Advocacy!

[Greg Sterling <firingpin@xxxxxxxxxxxx>]

 Don't fall victim to an inconsiderate employer.  The ADA can protect ypur
job if you want to continue working.  If you can no longer work then get to
the SS office and apply for disability.   After two years of being on SSDI
you automatically qualify for Medicare.

Go to www.youngparkinsons.com for help.

Check out my SS site at  

Greg
 
-------Original Message-------
 
From: Parkinson's Information Exchange Network
Date: Wednesday, February 19, 2003 7:55:36 AM
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
Subject: Re: Help Please with Advocacy!
 
Dear Maggie,
 
No one should have to do without their medicines. Please check the
following resources to see if you qualify. If you need further assistance
please contact me.
 

ing
 

 

 
With a tip of the hat to Murray Charters.
 
Terry Bowers
-- As a young-onset patient of Parkinson's Disease,
a progressive, degenerative, as yet incurable
neurological disorder, Terry has become a tireless
Advocate, speaking and writing on behalf of
Parkinson's patients and their families and caregivers.
 
To invite Terry to come and speak to your group,
club or organization contact him at
terry@xxxxxxxxxxxxxxx or call him at 254-747-0856.
Topics include Parkinson's Awareness,
Activism and Self-Determination, Bioethics, and
Stem Cells and Their Sources.
 
"A cure by 2005"
Texas Parkinsonian Advocate
----- Original Message -----
From: "Maggie Mauney" <m.mauney@xxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Tuesday, February 18, 2003 5:06 PM
Subject: Re: Help Please with Advocacy!
 
 
I have just lost all of my health benefits from my employer, so I, too,
am advocating for some type of governmental health care provisions. I
was diagnosed with PD last September, tho I've had symptoms for a
couple of years. I'm single, and only a 1-income family--and I've just
been cut back to part-time work at my job as grocery store cashier, due
to some health-related warnings I've received (too slow at cash
register; not engaging enough with customers; not able to bag or carry
heavy groceries, etc.).
 
I will have no option except to stop taking my PD medication, Sinemet,
sinceI can't afford to buy it without health care/prescription
coverage. I feel the government should make some provision for those
of us who don't quality for public assistance programs (I am not
eligible for medicaid and since there are no children in my household,
don't qualify for any type of assistance). I'm 52 years old, and it
will be 13 years before I qualify for Medicare. What am I to do for
those next 13 years for health care without some type of government
assistance?
 
Maggie Mauney
 
 
 
On Tuesday, February 18, 2003, at 01:56 PM, Meg Duggan wrote:
 
> Hello - We would like to print a "form" letter in our newsletter that
> people
> can copy or clip out and send to their state and/or federal
> representatives.
> We would like to begin to advocate for some type of fall-back major
> medical
> coverage for people who have already been dxd with PD. We are in a
> farm
> state and more than one insurer has pulled out of the entire area,
> leaving
> long time customers uninsured; many unable to afford to go into the
> existing
> state pools. Can anyone give us some ideas for this letter? I am not
> really
> sure what I am asking for! Thanks, Meg
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
> mailto:listserv@xxxxxxxxxxxxxxxxxxxx
> In the body of the message put: signoff parkinsn
>
 
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