Re: WHY I AM GLAD I GOT PD

["Donald F. McKinley" <flash@xxxxxxxxx>]

----- Original Message ----- 
From: "Raymond Barglow" <ray@xxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Thursday, February 20, 2003 9:15 AM
Subject: Re: WHY I AM GLAD I GOT PD


> Dear Don and Vivian,
> NO I KNEW OF IT  JUDITH RICHAARS HAD IT A OLD PIEN MEMBER BUT NEVER MET 1 IN  
> PERSON TILL NOW. SHE CAN NOT TALK OR EAT   SO I AMNOT SURE HOW I WOULD REACK  
> SO AM GOING TO WAIT A SPELL HER HUSBAND BEEN FRIEND FOR 40 YEARS SO AS NOT TO 
> MUCH GRIEF ON THE FAMILY FOR A SPELL  DON & VIVIAN
> Was it only recently that you learned how serious the Lou Gehrig's disease 
> was?  I am appalled by the finality with which these medical decisions
> are made.  You might share with us more about how the two of you are 
> experiencing all of this.
> 
> I lost a loved one years ago.  I was utterly wiped out by the grief.  I 
> remember at the time that a young man, who was very consoling, mentioned
> to me and everyone else that we should do our best to see that others do not 
> suffer the same fate in the future.  And now I am trying to
> communicate to everyone in this dicussion group the same thing.
> 
> We don't know how long it will take for the scientific discovery of a cure 
> for Parkinson's.  But it will happen, and even if it occurs too late
> for many of those who are currently ill, we want people in the future not to 
> be afflicted with PD.  (Which is not to deny that having PD can lead
> to deep insights and wisdom, including, as you say, thankfulness that we are 
> alive.)  And stem cell research may find a cure for Lou Gehrig's
> disease also.
> 
> So even though you are going through so much, Don and Vivian, I ask that you 
> (and everyone else in this discussion group)  help us advocate
> research that may find a cure.  I don't mean this in an unthoughtful way -- 
> one of the redeeming features of our illnesses is that we know
> something about what being sick and dying is like, and we can testify to the 
> urgency of the need for support, including research to make more
> bearable or cure illnesses like Parkinson's
> 
> To help us put a human face on the need for research, please visit the 
> websites:  www.stemcellaction.org
> or www.sabr.us/portraits-nav.htm
> These websites explain how you can email us a description and photograph so 
> that we can post your "portrait" on the Internet.  You can also
> contact me directly if you wish, by sending me an email message.
> 
> Best wishes, and please keep contributing to this discussion group.
> 
> Raymond Barglow, Ph.D.
> 
> ****************************************************
> "Donald F. McKinley" wrote:
> 
> > I HAVE A GIRL FRIEND OF   60 YEARS OF  MORE SHE HAS LOU GERICK SICKNESS SHE 
> > SAW 4 NERO'S THEY GIVE HER 3 TO 4 MONTHS TO LIVE. SO I AM   LUCKY.
> >                                     I.Y.Q. DON & VIVIAN=LOVE
> >
> > 
> >
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