Re: Hashimoto's Encephalopathy

[FrankandTeri <lvpgh@xxxxxxxxxxxx>]

Thanks for that information Margie.  Many women have Hashimoto's Thyroiditis
and it is very controllable using synthetic hormones.  The Encephalopathy
piece of this is something quite different and rare.  Estimates range for 15
to 30 case in the USA.  It is also very often misdiagnosed.  All that have
the Enchephalopathy will have the Thyroiditis but only on rare occasions
does the Enchephalopathy occur.  It seems to be controlled by steroids.
They are no picnic either.

Our search is to find any other PD patients that may also have the
Encephalopathy and compare treatment protocols.  A secondary reason for this
posting is to raise awareness of this condition in any patients that have
the Thyroid condition and also have PD.  Any patient that has both should
make their neurologist aware of this possibility.  Be especially aware of a
quick onset and worsening of PD symptoms if you have Thyrdoidtis and PD.  It
is an indicator that you may have the other condition.  Seeking a quick and
accurate diagnosis will be a life saver.


----- Original Message -----
From: "Margie L. Nestler" <mnestler@xxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Monday, March 31, 2003 8:06 PM
Subject: Re: Hashimoto's Encephalopathy


> HI FRANK AND TEN,  I HAD HASHIMOTO'S DISEASE,  IN 1985 I HAD MY THYROID
> REMOVED. BECAUSE IT BECAME ENLARGED
> WHEN IT WAS FIRIST DIAG, I STARTED TAKING SYNTHROID,  I STILL TAKE
> SYNTHROID.  I HAVE NO PROBLEMS EXCEPT I CAN'T SING AND MY VOICE IS
> SCRATCHY.  MARGIE
> On Mon, 31 Mar 2003 15:10:54 -0500 FrankandTeri <lvpgh@xxxxxxxxxxxx>
> writes:
> > Has anyone her suffered form Hashimoto's Encephalopathy?  This is a
> > situation where the antibodies that attack the Thyroid in
> > Hashimoto's Thyroiditis also attack the brain.
> >
> > This rare disease causes Parkinson like symptoms and is quite
> > serious on its own let alone if you have PD.
> >
> > The current course of treatment is steroids which have their own set
> > of problems.
> >
> > We are interested in comments for treatment protocols being used in
> > the treatment of this disease.  We have read the web information but
> > are interested in real cases.
> >
> >
> >
> >
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