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I am George Campbell. I am 54 years old and have had Parkinson's or 15 years. I have extreme tremor, loss of balance and am always sleepy. The tremor has been controlled, but not eliminated, by bilateral DBS[5-1-02]. The level of stimulation necessary to control the tremor has made my balance worse. I just started using a CPAP machine to see if I can be less sleepy. I have many other symptoms that seem to be more manageable. Where you get DBS is very important. My bilateral took a total of four hours with no complications and a tolerable level of pain[no pills]. A friend just got A bilateral . It took 12 hours for the first side, Two weeks later 13 hours for the second side. And now , two months later, a third procedure to relocate an electrode. If your neurosurgeon isn't doing 75 to 100 DBS a year plus many other halo surgeries and if she doesn't have a dedicated halo surgery room and halo staff and halo after care staff, KEEP LOOKING. Check the price of having your units regulated. It goes as high as $750 in Texas. This is crazy greed. This after care service should be provided by Medtronic's for FREE with a referral back to the neurologist if the technician has any trouble. ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx In the body of the message put: signoff parkinsn GWC
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