Parkinsn's Email List Message

Posting to the Parkinsn List is a benefit of Subscription


[Message Prev][Message Next][Thread Prev][Thread Next][Message Index][Thread Index]

Back again


I am George Campbell. I am 54 years old and have  had Parkinson's or 15 years. 
I have extreme tremor, loss of balance and am always sleepy. The tremor has 
been controlled, but not eliminated, by bilateral DBS[5-1-02]. The level of 
stimulation necessary to control the tremor has made my balance worse. I just 
started using a CPAP machine to see if I  can be less sleepy. I have many other 
symptoms that seem to be more manageable.
Where you get DBS is very important. My bilateral took a total of four hours 
with no complications and a tolerable level of pain[no pills]. A friend just 
got A bilateral . It took 12 hours for the first side, Two weeks later 13 hours 
for the second side. And now , two months later, a third procedure to relocate 
an electrode. 
If your neurosurgeon isn't doing 75 to 100 DBS a year plus many other halo 
surgeries and if she doesn't have a dedicated halo surgery room and halo staff 
and halo after care staff, KEEP LOOKING. Check the price of having your units 
regulated. It goes as high as $750 in Texas. This is crazy greed. This after 
care service should be provided by Medtronic's for FREE with a referral back to 
the neurologist if the technician has any trouble.

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx
In the body of the message put: signoff parkinsn
GWC


Parkinsn's List Subject Index

Parkinsn's List Thread Index

Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.

Mail converted by MHonArc 2.6.10
Site Hosting donated by He.net
&
Grant from The Parkinson Alliance