Re: DBS progress/Raj

[brightline <brightline@xxxxxxxxxxxxxxx>]

Hi! Ray:
    I am sorry to hear your problems still persistimg.  I thought you were
feeling better in the beginning.

    I am still managing without sinemet. I have added Aceyl-L-caritine and
L-carnosine to my arsenal.  Both are supposed to have neuroprotective
effect.  They are really helping me, I think.  Only time will tell.

    Talk to you later.

    Take care.

    Raj
****************
----- Original Message -----
From: "Rayilyn Brown" <RayilynLee@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Saturday, September 27, 2003 6:04 PM
Subject: Re: DBS progress/Raj


> Hi, Raj, progress is slow - -the only thing that progresses  is PD -still
> have tremor on "good" right side after programming     - I had tingling
and
> sweating this time which they don't want, so will have to go back for
another
> prgramming to up the amps.  Walking is getting more difficult, but DBS
does stop
> tremor, which drives me nuts..
>
> Dr. Abe has had some testimonials on DBS and it seems for some people it
is a
> tradeoff - you either walk or talk, or some othr weird combination  I am
> losing my voice since before surgeries and seriously doubt that  I will
ever be
> able to really walk again.  considering botox for toes and giving Sinemet
> another umpteenth try.
>
> Using the computer really tires me, so I will probably eventually
disappear.
>
> I'm coming on-line every few days to order my groceries from
Albertsons.com
>
> Also had bad chest pain twice this month - probably gas - I"m such a
gasbag
> anyway
>  Ray
>
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