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Re: DBS progress/Raj


Ray  I am a nontalkative fan of yours and just want to wish you best.  Miss
you wit and wisdom.  Re the gas, try tilting bed with high point at head to
prevent reflux.  Bob
----- Original Message -----
From: "Rayilyn Brown" <RayilynLee@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Saturday, September 27, 2003 5:04 PM
Subject: Re: DBS progress/Raj


> Hi, Raj, progress is slow - -the only thing that progresses  is PD -still
> have tremor on "good" right side after programming     - I had tingling
and
> sweating this time which they don't want, so will have to go back for
another
> prgramming to up the amps.  Walking is getting more difficult, but DBS
does stop
> tremor, which drives me nuts..
>
> Dr. Abe has had some testimonials on DBS and it seems for some people it
is a
> tradeoff - you either walk or talk, or some othr weird combination  I am
> losing my voice since before surgeries and seriously doubt that  I will
ever be
> able to really walk again.  considering botox for toes and giving Sinemet
> another umpteenth try.
>
> Using the computer really tires me, so I will probably eventually
disappear.
>
> I'm coming on-line every few days to order my groceries from
Albertsons.com
>
> Also had bad chest pain twice this month - probably gas - I"m such a
gasbag
> anyway
>  Ray
>
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