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Re: Atypical PD?/Judith


Judith,

PD meds don't seem to help me either.  I've just had bilateral DBS brain
surgery in subthalmus nucleus and it really helps tremor, but other things are
atypically worse, like walking and speaking

I don't have DRD (Dopamine Responsive Dystonia)(DBS is now done on the globus
pallidus   "sp"?for dystonia)  and was only "ON" the first time I took
Sinemet.  Told my neuro I have never gotten the "Big Bang" out of meds like most
people do.  she conceded I was a "weird duck", but believes I do have PD as I
have every syjmptom except facial mask and and PET scan which supports the
diagnosis of idiopathic PD.  Am going for another programming hopefully next 
week.
She even asked me what I thought I had.   It is very discouraging.

Ray

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