Re: Atypical PD?

[Madhu Mehra <vmehra@xxxxxxxxxxxxxxx>]

Dont know much about atypical but what about Parkinsons Plus? My Dad had
Parkinsons Plus and deteriorated very rapidly and medicines didnt do him too
much good.
Take Care
Lavanya
----- Original Message -----
From: <JudeFortey@xxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Friday, October 31, 2003 7:58 PM
Subject: Atypical PD?


> Firstly I'd like to say a big thank you to everyone who contributes to the
> list and for the huge help you've been to me and my husband. I've been a
member
> for some years but have never posted before.
> My husband is 54 and was diagnosed 6 years ago, he'd had symptoms for well
> over 3 years previous to diagnosis. His first medications was Requip but
apart
> from bad side-effects it didn't seem to help his rigidity or shuffling
walk. I
> think at that time he underwent a test and was given, under supervision, a
> "large" dose of L-dopa to check that he was able respond to it. Medication
was
> changed and over the years he's taken a "cocktail" of medication with
> modifications from time to time. He has volunteered to be member of a
trial to take
> place, here in Germany, where retina cells are implanted in the brain.
However,
> when he went for the first meeting the doctor said she thought that he was
> atypical and not responding to the medication as a typical pwp would. One
basis
> seems to be the fact that he doesn't get a big "boost" first thing in the
> morning. His medication is as follows:
> Cabaseril 8mg pro day (4mg early a.m.) comtess 1200mg (6x200) nacom
5x100mg
> and 200mg retard before bed and tregor 2x200mg.
> His meeting was on Wednesday and today his neuro's secretary phoned asking
> him to go for tests this coming Monday following a call from the trail
doc. to
> his neuro. We have great faith in his neuro who has said Tony is slightly
> under-medicated so that he can keep going longer. Tony is getting worse
but still
> has a full-time university job although he gave up being head of
department in
> June this year. He doesn't always remember to take his meds on time and
can be
> up to a couple of hours late. Has anyone else been told they are atypical
or
> have any comments to make on the dosage my husband is taking?
> Thank you very, very much for any help you can give and sorry this is such
a
> long message.
> Judith
>
>
>
>
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