Parkinsn's Email List Message

Posting to the Parkinsn List is a benefit of Subscription


[Message Prev][Message Next][Thread Prev][Thread Next][Message Index][Thread Index]

Re: Dr. Garg


Today Dr. Fink replied to my letter as follows:

I still urge caution.  Has Dr. Garg published any of his work in peer-reviewed 
journals?  Do you have any references for those publications?  Is Dr. Garg 
licensed in any state in the USA?  Is he a trained and Board-certified 
specialist?

There is no jurisdiction in the United States that is going to allow a 
physician 
to perform procedures on humans using a method that has not gone through 
the various phases of a medical research project.  The FDA and the NIH 
control these studies very carefully, this to protect the American public.  The 
"rules" in other countries are much less stringent.


Best,

Bob
To which I replied:
Dr. Fink:  I appreciate your concerns and cautions about the idea Dr. Garg 
presents.  I do not know the answers about how such a procedure as he has 
developed may come about to save lives in this country - all I do know is that 
I am going to see this project through to a conclusion - which may take 
years...but it needs doing.  Some things I have to take in faith right now, 
trusting that someone in the medical community in this country for 32 years 
knows more about what can be accomplished in the regulatory areas than I.  I'm 
sure it is not going to be easy, but being about the closest a person can be to 
the Parkinson pain, without actually having the condition, I know I must help 
however I can.  It amazes me that noone seems interested in talking about 
solving the problems - just that it can't be done - my experiences during 53 
years of living tell me it has more to do with money and self interest than 
"protection of the public".  The movies in this country continuously tell "true 
stories" about everything that can be done if there is a will - even elephants 
being parachuted out of planes - well this is a job that needs doing -where is 
the will? for the sake of suffering and dying people (needlessly - we are 
sacrificing years of people's lives, and losing an invaluable and 
underappreciated resource in our older citizens- part of the destruction of the 
American Family).  I am not familiar with all of your program - but it seemed 
you address the emotional concerns of people - well people are being 
"conditioned" to die - to let go - to accept the inevitable - that is not the 
American way that made this country great - every life was valuable and worth 
keeping and many pioneers worked and suffered to make advances,to their last 
breath - Orville and Wilbur Wright didn't have the FAA to rely on for 
safety...and why should citizens of other countries have to be willing to 
"break the new ground", just so Americans can reap the benefits (usually based 
on financial guarantees) - it happened with Debakey in South Africa and many 
pioneering medical advancements and right now the DBS that goes on everyday - 
does so because of France's willingness to venture into it and it is certainly 
not guaranteed to give good results-patients are just being led into it 
(learning as they go), many being hurt and even dying as a result, but you 
don't hear those stories in the news...and as far as "peer review" - when it 
comes to my husband looking at his survival waning away, inch by inch, (and 
medications had him "on the way out" earlier this year) - he really couldn't 
give a damn about peer review - it's the reality of what he has presented 
before him to add time to his life that he makes his decisions about....there 
is much to be discussed about the whole process involved in this - which I hope 
to write about - my husband and I have decided to go for something that may 
help advance a real remedy (not worried about that word "cure" either), whether 
he can survive it or not (knowing we have to rely on meds in the interim) - 
John Ritter's little girl stood up with arms stretched upwards and asked God to 
"drop him, drop him!" and when told "it doesn't work that way" she replied "but 
what if it did, and we never tried"....the wisdom of a child...we have gone 18+ 
years - there is a distance to go...all we ask is for the help to get 
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:listserv@xxxxxxxxxxxxxxxxxxxx
In the body of the message put: signoff parkinsn
there...Marie and Judd


Parkinsn's List Subject Index

Parkinsn's List Thread Index

Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.

Mail converted by MHonArc 2.6.10
Site Hosting donated by He.net
&
Grant from The Parkinson Alliance