Living Alone With Parkinsons

[Bill Woolley <bill.woolley@xxxxxxx>]

Living Alone With Parkinsons

This is just my way to tell you that I am back out of the hospital, and that 
lots of information has been added in the recent weeks.

It is my hope that some of this information may be of help to  people with 
Parkinsons Disease.

Please check often as more  is added daily. Thanks! Cheers!


Current Health Thought: >> www.LivingAloneWithParkinsons.com

Seasons Greetings to One & All !!

Choose to Make Every day a Happy One

Bill

* * * * * * * * * * * * * * * * * * * * * * * * * * * * *
  ----- Original Message -----
  From: Victor P Varsak
  To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
  Sent: Friday, March 28, 2003 2:04 PM
  Subject: Re: disability


  Scott, how I can so relate to your feelings. each day I wonder how affected
  my activities will be because of PD.  I was diagnosed this year and the
  diseases has progressed very quickly.  As a matter of fact, I have totally
  lost my ability to type with my right hand so I now rely on the computer to
  do the typing for me.the software is not perfect but it works. They say
  that the younger you are the quicker the disease progresses. I'm not
  comforted in knowing that and struggle to deal with the diagnosis. I am
  forty-eight years old and Parkinson's disease has affected my entire life.
  I have had to make adjustments in all aspects of my life and I am dealing
  with the depression that follows as a result of limited capabilities.  It
  is very difficult to get a loved one to understand what impact this disease
  has on one's life. But, to answer your question, yes I have many ups and
  downs physically and psychologically.  The medication helps but the disease
  rules.

  Victor




                        Bob Allison
                        <ballison@xxxxxxxx>          To:      
PARKINSN@xxxxxxxxxxxxxxxxxxxx
                        Sent by:                     cc:
                        "Parkinson's                 Subject: Re: disability
                        Information Exchange
                        Network"
                        <PARKINSN@xxxxxxxxxx
                        TORONTO.CA>


                        03/27/2003 09:04 PM
                        Please respond to
                        "Parkinson's
                        Information Exchange
                        Network"






  Scott  I have only been dx'd a year and i have my good and bad days
  already.
  I can only imagine how worse yours are than mine--but definitely dont make
  any permanent decisions on those bad days.  I am not on meds yet so I cant
  offer any intelligent advice there but perhaps it is time to try "more" or
  a
  different mix.  Bob
  ----- Original Message -----
  From: "scott burnett" <sburnett001@xxxxxxxxx>
  To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
  Sent: Thursday, March 27, 2003 8:58 PM
  Subject: disability


  > Once again as the school year draws to an end, I run out of energy and
  > start thinking that maybe now is the time to go ahead with a State
  > Teachers Retirement System disability application.  Most days at work
  > are on and off affairs, with the emphasis on the off.  Lots of shaking,
  > stiff muscles in my neck and back and especially slooooow movement.
  > Sometimes I can't even double click the mouse to activate a program, so
  > I have to ask my students to do it for me.  Yesterday was really bad
  > and I was very much ready to do it.  Today I felt pretty good so I was
  > feeling guilty about even considering it.  I guess the reason I'm
  > seriously considering applying is that I find that I spend all my
  > energy at school and by the time I get hope at 5 or so I've got nothing
  > left for my own kids and family.  Many is the night that Daddy is in
  > his bedroom, and mom is working on homework with the kids, telling them
  > to be quiet because Dad doesn't feel well.  I'm also thinking that if I
  > wasn't working I could put off the time when I reach the toxic level of
  > my sinemet.  Currently I'm taking five  25/100's per day.  I just had
  > to increase the dosage by taking a pill at 4 AM so that I can teach
  > until my 7 AM and 11AM dosage have kicked in.  Prior to taking the 4AM
  > dose I was off until about 2 PM daily.
  >
  > Anyway, my 13 year old is kicking me off the computer so away I go.
  > I'm 45 years old and have been diagnosed for 5 or 6 years.  Does
  > anybody else have these same back and forth feelings?
  >
  > Scott
  >
  > ----------------------------------------------------------------------
  > To sign-off Parkinsn send a message to:
  mailto:listserv@xxxxxxxxxxxxxxxxxxxx
  > In the body of the message put: signoff parkinsn
  >

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In the body of the message put: signoff parkinsn