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Re: we need your ideas and suggestions!!/for Joan


In a message dated 3/20/04 7:25:52 PM, snyder201@xxxxxxxxx writes:

<<we have been asked by the ceo of a major downstate medical
center to meet with the staff and management of a newly opened pd and
movement disorder clinic to offer our input as to what we would like
this clinic to offer in the way of healthcare and services.  we are all
so excited about this once-in-a-lifetime opportunity to be heard that we
don't want to leave out anything that would be necessary or envisioned
on a wish list of things that pwp's need and want in a center of
excellence. >>

Hi Joan,

Some things on my wish list:
- availability of alternative therapies
- connections to expert counseling regarding disability, employment issues,
etc.
- attention paid to children of parents with PD: counseling groups,
age-appropriate story
books and informational materials, etc.

Thanks for the opportunity to be heard!

Kathleen

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