Re: Unilateral PD

[Wendy Siegel <wenwolf@xxxxxxx>]

Hi Alison! That was Raj who had the sample analyzed. It seems he was
part of a study. Read what he wrote back to me below. We all hate it.

Wendy

----- Original Message -----
...

Wendy, where did you send your blood sample.  I would really like to
send my
mom's to have it analysed,  I hate this disease.

alison



> Hi Wendy:
>     This was done by NIH Neurologists who undertook a genetic
screening
for
> PD patients.   I enrolled in this study last year.  I sent my blood
sample
> by mail. I presume they studied the DNA or RNA for the genetic
variation
> among PD patients.
>     For a day or teo, I thought thaat I wasnot having PD because I did
not
> have the known genetic changes commonlyfound inPWP.  However, it
ocurred
to
> me that a more valid interpretation of this result would be that we do
not
> know all the various genes that could possibly involved in PD.  It is
likely
> that people from different ethic geneology may have different genes
mutated
> which could produce symptoms of PD.  All I can think of is that this
is a
> very complex disease and we need to know more about it.
>     Raj
> ***********
>
>
> ----- Original Message -----
> From: "Wendy Siegel" <wenwolf@xxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Tuesday, March 30, 2004 10:37 PM
> Subject: Re: Unilateral PD
>
>
> > Hey Raj!
> > What blood test are you referring to? I hope you are correct, and
Rich
> > has this rare form, if the other symptoms follow slowly!
> >
> > Wendy
> >
> > -----Original Message-----
> > From: Parkinson's Information Exchange Network
> > [mailto:PARKINSN@xxxxxxxxxxxxxxxxxxxx] On Behalf Of Brightline
> > Sent: Monday, March 29, 2004 7:19 AM
> > To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> > Subject: Unilateral PD
> >
> > ... Apparently all the ET
> > tremors starting on one side to begin with is characteristic of this
> > rare
> > kind (30%?) of PD, where other symptoms follow slowly.  Besides, I
had a
> > call from NIH last week.  They did not find in my blood test any of
the
> > known gene mutations that has been known to occur in PD patients.
> > Obviously, there are other PD genes that we don't know about.
> >     Raj
> >
> >
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