Re: DBS for PD and Dystonia: Long term Results

[Donna Thrash <dolphins11465@xxxxxxxxxxx>]

i think that the rate of success is higher than 15%.  probably more like 65%. 
but i would suggest to anyone that they wait until they feel that the meds are 
no longer working properly..that is my opinion and i am one of who had it done 
quote "prematurely". donna
>
> From: Chandrashekhar Nagarkar <snagarkar@xxxxxxx>
> Date: 2004/09/29 Wed PM 11:35:17 EDT
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> Subject: Re: DBS for PD and Dystonia: Long term Results
>
> I would like to know why only 15% of pwps benefit from DBS
> also what do the psycho cognitive tests determine?
> I am 56 diagnosed 7 years ago with left side rigidity, now lead a reasonable 
> life with 7 doses of Stelavo (L dopa25/100 + comt ) plus pergolide (1mgX7).
>
> I am wondering if early dbs is possible and desirable to reduce the drug 
> intake and thus save my heart form the effects of pergolide, Would some one 
> please comment and give me the benefit of their experience. I feel I am 
> deteriorating faster and feel this is my only route to survive until the 
> "cure"
>
> Shekhar
> Manchester ,UK
>   ----- Original Message -----
>   From: M.Schild<mailto:mmoo@xxxxxxxxxxxxxxxx>
>   To: PARKINSN@xxxxxxxxxxxxxxxxxxxx<mailto:PARKINSN@xxxxxxxxxxxxxxxxxxxx>
>   Sent: 27 September 2004 07:44
>   Subject: Re: DBS for PD and Dystonia: Long term Results
>
>
>   >> "Are there any studies that look at the benefits of having
>   >> DBS before vs
>   >> after levadopa treatment? Or is DBS only tried after levodopa no longer
>   >> is effective?"
>
>
>   > The short answer is no. DBS has only had wide spread use for about the
>   > last 5 years.
>
>
>   In fact, in France they have been performing DBS for about 10 years now. 
> They
>   started doing it mainly on advanced cases. Now the tendency is to do it on
>   moderate cases and not after 70 years of age and never without extensive
>   psycho/ cognitive tests.
>   They reckon it can benefit about 15% of all PWPs
>   Maryse cg JOhn 75,15
>
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