Re: DBS for PD and Dystonia: Long term Results

[Lee Wu <leewu58@xxxxxxxxxxxx>]

Dear Shekhar,
                     The 15% who benefit from DBS I'm not certain about.
Amongst the Parkinsons community in my corner of the world anyway, those that 
have had DBS I either know or know of and they've all benefitted from the 
procedure.
I certainly wasn't ready for DBS till the captain of the ship (me) felt it 
necessary so if anybody asks me when the best time to have it is, my answer is 
"when you're ready."
I didn't have a neuropsychologist test me for cognitive decline. I'd had it 
done before. I think when it was done it was for research purposes so that may 
have been used.
 I believe however, it's usually done pre operatively.
As for pergolide I feel much better since stopping it, more able to sleep and 
concentrate. Soon I'm to have an echogram to see if there is any valve damage.
 There are other agonist drugs eg cabaser. I don't take any drugs now so can't 
comment on cabasers effectiveness.
                                                            Cheers,
                                                                       Lee

Chandrashekhar Nagarkar <snagarkar@xxxxxxx> wrote:
I would like to know why only 15% of pwps benefit from DBS
also what do the psycho cognitive tests determine?
I am 56 diagnosed 7 years ago with left side rigidity, now lead a reasonable 
life with 7 doses of Stelavo (L dopa25/100 + comt ) plus pergolide (1mgX7).

I am wondering if early dbs is possible and desirable to reduce the drug intake 
and thus save my heart form the effects of pergolide, Would some one please 
comment and give me the benefit of their experience. I feel I am deteriorating 
faster and feel this is my only route to survive until the "cure"

Shekhar
Manchester ,UK
----- Original Message -----
From: M.Schild
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
Sent: 27 September 2004 07:44
Subject: Re: DBS for PD and Dystonia: Long term Results


>> "Are there any studies that look at the benefits of having
>> DBS before vs
>> after levadopa treatment? Or is DBS only tried after levodopa no longer
>> is effective?"


> The short answer is no. DBS has only had wide spread use for about the
> last 5 years.


In fact, in France they have been performing DBS for about 10 years now. They
started doing it mainly on advanced cases. Now the tendency is to do it on
moderate cases and not after 70 years of age and never without extensive
psycho/ cognitive tests.
They reckon it can benefit about 15% of all PWPs
Maryse cg JOhn 75,15

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