Re: Ganglioside study

[Joseph Hertz <josephone@xxxxxxxxxxxxx>]

Greg:  I have volunteered for the GM1 ganglioside clinical study.  I
have not yet received a decision but they have just received my medical
records from my neurologist.  Participants will be required.  You must
be between 35-85 years old and diagnosed with Idiopathic Parkinson's
disease, having mild to moderate symptoms and have not had surgery
related to Parkinson's disease.  You will be required to take an
injection of GM1 ganglioside under the skin twice a day.  You will have
to go to Philadelphia for 2 baseline evaluations in the beginning of the
study and retu            rnonceevery6weeksforthefirstsixmonths.Inthe
next phase of the study you can receive GM1 for up to two years.  The
office visits are required every six months for this phase of the
study.  There is no cost to participate in the study.  However, you will
be responsible for all travel and lodging expenses.  The study also
requires you to have brain imaging scans performed.  The SPECT scan is
similar to a MRI except except that the head only enters the machine.
Let me know if you have any further questions.  Joe.

Greg Sterling wrote:

>  Has anyone volunteered for the gangliodide GM1 study at Thomas
> Jefferson-Philadelphia?  If so, have you received an initial phone
> call yet?  Do you have any details on it?  Like how many visits to
> hospital, any cost to patient, stipend, will they help with travel,
> etc.?I understand they are flooded with PWP's wanting to
> participate. Greg47/35/35