Fw: Re: ARIZONA - TELL THE COMMITTEE MEMBERS/ corrected advocacy letter

[Ivan M Suzman <cureit@xxxxxxxx>]

Dear Maryhelen and other advocates:

Corrected final draft follows below.

IMS



^^^^^^  WARM GREETINGS  FROM  ^^^^^^^^^^^^  :-)
 Ivan Suzman        50/39/36       cureit@xxxxxxxx      :-)
 Portland, Maine    land of lighthouses     10   deg. F   :-)
********************************************************************

--------- Forwarded message ----------
From: Ivan M Suzman <cureit@xxxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
Date: Tue, 25 Jan 2000 02:40:01 -0500
Subject: Re: ARIZONA - TELL THE COMMITTEE MEMBERS/ advocacy letter
Message-ID: <20000125.023758.-217197.13.cureit@xxxxxxxx>

Maryhelen and other PD advocates

Please print copy, forward and use as needed.
Good luck with this important research initiative.


Sincerely,

Ivan Suzman
Portland ,  Maine


Dear ladies and gentlemen of the Arizona Legislature:

Please fund this pioneering bill for the $1,ooo,ooo.oo (one million
dollars)
requested for research on Parkinson's Disease.  I am a friend of my
colleague and fellow
long-time PD patient-advocate, Maryhelen Davila of Phoenix.  I am 50, in
my 14th
year of devastation, having had Young Onset Parkinson's Disease problems
since 1986. I am stopped by PD, homebound  here in the snows of Maine.

I face paralysis whenever any of eight round-the-clock doses of medicines
fail to work.  With this immobility comes unimaginable pain, and
muscle clenching from head to foot.  This includes the muscles inside
my tongue,and in the muscle pulling the eardrum, in my middle ear.

Please honor the memory of the great Arizonan, MO UDALL,
and the living work of Mr. Muhammad Ali, who graces your
extraordinary state with his research center at the Barrows
Hospital.  Please make PD a PRIORITY.  The diagnosis rate
has been estimated to be one person every nine minutes in the USA !

I have worked for  six years with Maine's house, senate, governor,
and US congressional delegations. I have been asked to author this
April's
upcoming Governor's Parkinson's Awareness Resolution.

A copy of my 9/28/99 Testimony  for the  Appropriations Committee of the
US Senate,
about living daily with Young Onset Parkinson's Disease, can be obtained
by contacting Linda Lyon,  senior Aide to US Senator  Olympia Snowe.
Ms. Lyon can fax a copy of this document to you ; please call her
at Senator Snowe's office here in Porland, ME, 207-874-0883.

Thank you for helping us conquer this slowly killing disease,
whose origins are still unknown.

SIncerely,

(Prof.) Ivan Mfowethu Suzman
Portalnd, Maine  (207) 797-8488

On Mon, 24 Jan 2000 17:32:21 EST MhDavila@xxxxxxx writes:
>DEAR PD RESEARCH ADVOCATES OF AZ
>
>