Re: PD Case profiles/history and Janet Reno

[Judy George <judy_george@xxxxxxxxxxx>]

linda and yh
sometimes it is difficult to take one day at a time when you are young and
need to provide for the future of family
i am older, of course better, and dont feel the uncertainty/concern/distress
which a younger pd would feel
it is a difficult confrontation
judy


> From: Linda J Herman <ljherman1@xxxxxxxx>
> Reply-To: Parkinson's Information Exchange Network
> <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> Subject: Re: PD Case profiles/history and Janet Reno
> Date: Tue, 25 Apr 2000 07:29:59 -0400
>
> Dear YH Tan and list,
>       As you will see each PWP experiences the disease differently,
> although it is generaally said that the progression tends to be slow in
> young onset cases. There are few statistics on young onset PD, and I
> don't know of any databases at this time. I was diagnosed at 45, about 4
> 1/2 years ago, and I am still taking small doses of medication and
> continue to work. I think Murray's letter offered excellent advice to a
> newly diagnosed patient.
>         Most importantly, I think  is to learn as much as you can about PD
> and
> find a good neuro who is knowledgible about PD, and who will listen to
> you. Try to keep a positive attitude, and take life a day at a time. I
> think it helps  to take positive actions to fight PD and bring us closer
> to a cure  in whatever way you choose - through political action, fund
> raising, education, publicity - there are many different paths.
>            Did anyone else happen to see Janet Reno on Nightline last
> night. She was interviewed of course about the Elian case, but at the end
> Ted Koppel stated that his mother also had PD, and recalled she was told
> to try to avoid stress. He asked Janet how she was dealing with it. In
> her usual manner she replied that it does increase her tremors, but she
> doesn't let it stop her, and made it clear she could carry on with her
> job. She also stated she has many more "mountains to cliimb." I believe
> she is a great role model for other young Parkies, and wish her the best
> as she now faces questioning by some hostile members of Congress who are
> calling for hearings.
>        JUst wondering - if this is their way of further postponing action
> on issues like drug coverage, patient bill of rights, stem cell research,
> and all the rest?
> Linda

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