Re: Welcome to new members (& reminder to long-term members)

[hugues douglas <hdouglas@xxxxxxxxxxxxxxxx>]

SIGNOFF  PARKINSN
----- Original Message -----
From: Barbara Patterson <patterso@xxxxxxxxxxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Tuesday, May 16, 2000 1:09 PM
Subject: Welcome to new members (& reminder to long-term members)


> Welcome!
>
> You have joined the PARKINSN mailing list, also
> known as the Parkinson's Information Exchange
> Network (PIEnet).
>
> Please send a message to the list members (if you
> want to) introducing yourself and any
> Parkinson's-related topics you would like.
>
> Let me introduce myself. I am a secretary for four
> faculty members in the School of Nursing, McMaster
> University.  In September, 1992, I was diagnosed
> as having Parkinson's ... hence my interest in
> this list.
>
> My purpose in starting the list was the exchange
> of information about Parkinson's. The list rapidly
> changed into the largest support group I know.
> Besides its original purpose, the list has become
> 'a means of feeling connected' to others... a way
> of feeling we're not alone... of making the road
> of living with pd easier to bear.
>
> I have always felt that we hear each other better
> on the list because we can't  see each other.
> Symptoms, age, colour, race, don't interfere.  The
> list knows no countries, has nothing to do with
> money... there's no "what's in it for me?"
>
> But these same qualities mean our words are open
> to misinterpretation. Since others can't see our
> wry smile or wink or hear our tone of voice, a
> goal of  keeping it "short & sweet" can result in
> appearing abrupt.
>
> Also, the same word can have different meanings
> and different shades of meaning to different
> people in different areas of the world so care
> must be taken in both your writing and your
> reading of the messages.
>
> Flaming and selling are not allowed.  Please send
> messages in plain text only.  Do not make any
> changes in medication or any treatments without
> consulting your physician.  Be kind.  Be honest.
> Share the time fairly.... if you think you have
> taken more than your share of the list resources,
> you just might have.
>
> Keep it generally related to Parkinson's. Don't
> abuse the generosity of the University of
> Toronto's free gift of the list. Don't include all
> of the message to which you are replying. Use
> plain text with no attachments. Wash your hands
> with soap before you eat. :) In other words, use
> the same common courtesy that you would elsewhere.
>
> We need everyone's voices if we are going to make
> a difference in the care and treatment of pd and
> the motivation and funding of research. Speak up.
> Tell your story. Ask your questions. Answer
> questions. Debate/argue about the answers.
> Debate/argue about the goals, administration,
> day-to-day functioning of the list. Tell a joke...
> but please don't attempt to silence anyone else's
> voice.
>
> The messages on the Parkinsn list may be personal
> but they are NOT private... never have been. The
> illusion of privacy when using e-mail is just
> that:  an illusion.
>
> Never, in the history of this planet, has this
> kind of relationship existed. We meet in a place
> that has no walls. We talk to our friends whom we
> have never seen. We care deeply for other members
> whom we will never physically hug. Folks, we're
> making it up as we go along, so any rules have to
> be flexible.
>
>  I hope you enjoy your involvement with the
> Parkinsn Information Exchange Network.
>
>  Barb
> ==================================================
> Barbara Patterson   patterso@xxxxxxxxxxxxxxxxxxx
> HSC 2J22                 905-525-9140, ext. 22403
> Secretary                     School of Nursing
> McMaster University      Hamilton, Ontario, Canada
> ==================================================
>
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 ===========================================================================
> Barbara Patterson
patterso@xxxxxxxxxxxxxxxxxxx
> HSC 2J22                                        905-525-9140, ext. 22403
>                         School of Nursing
>
 ===========================================================================
>