Re: DSSE & urination

[Judy George <judy_george@xxxxxxxxxxx>]

barb
the list has the wonderful propensity to encourage frankness and to put
one's inhibitions aside
i love it for its capacity to deal with most things from the experiences of
time, meds, andneuro visits
one feels very much at home with all of the posters
we all do it  and if it is a problem then i need to know whether it is old
age, or teachers bladder or pd bladder or what and who better to help that
you all judy


> From: Barb_MSN <Barb_MSN@xxxxxxxxxxxxx>
> Reply-To: Parkinson's Information Exchange Network
> <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> Subject: Re: DSSE & urination
> Date: Fri, 30 Jun 2000 00:40:35 -0700
>
> Judy, Murray, et al
>
> BOY!  Do we get down to the nitty-gritty here on the List.
>
>  When I tried to speak about urinary frequency as a PD symptom
> with my cousin as she asked what each pill I was taking was for
> (Pooh!  A mere handful, compared to those occasional "TWO handfuls
> Pill Days!) <rueful smile>,  found her unable to discuss the
> EITHER topic - the PD  or the frequency.... She found the PD too
> scary to talk about and was too embarrassed to talk about the
> other  topic.  Mind you, we are CLOSE cousins and close
> friends....
>
> Anyway, back to the topic... I take a generic form of Daytril (the
> gold standard for frequency) comprised of oxybutinin chloride and
> imipramine daily.
>
> In the 2 years I've been on these drugs, I no longer run to the
> bathroom the 50 to 60 times a day that had made my life HELL for
> several years prior to taking the meds.
>
> And YES.... frequency IS caused (in our cases) by the PD doing
> it's "thang" on our respective and collective bladders.  But at
> least we DO have the drugs nowadays, and the drugs DO work!!!
>
> WOWIE!   I now no longer feel like I'm single handedly supporting
> the toilet paper industry!!
>
> Barb Mallut
> barb_msn@xxxxxxxxxxxxx
>
> Original Message-----
> From: Judy George <judy_george@xxxxxxxxxxx>
> To: PARKINSN@xxxxxxxxxxxxxxxxxxxx <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Date: Friday, June 30, 2000 12:15 AM
> Subject: Re: DSSE & urination
>
>
> >nothing like personal experience murray
> >thanks for your frankness it helps to guage  and evaluate my
> symptoms
> >judy
> >
> >
> >>From: Murray Charters <Murray_Charters@xxxxxxxxx>
> >>Reply-To: Parkinson's Information Exchange Network
> >><PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> >>To: PARKINSN@xxxxxxxxxxxxxxxxxxxx
> >>Subject: DSSE & urination
> >>Date: Wed, 28 Jun 2000 22:49:24 -0700
> >>
> >>On 28 Jun 2000, at 20:33, Judy George wrote:
> >>
> >> > janet and all
> >> > got the dsse from your site
> >> > i cant open yours marjorie and no children have materialised
> to assist
> >> > what a great tool
> >> > my thanks for your wonderful efforts at your site
> >> >
> >> > could i ask
> >> > how does pd effect urination?
> >> > what should i be noticing
> >> > how do muscle cramps manifest themselves
> >> > often, on the odd occasion, seldom????????
> >> >
> >> > the other symptoms i understand well enough i think
> >> > regards to you all
> >> > judy
> >> >
> >>
> >>Hi Judy,
> >>Speaking from personal experience, I have noticed variances in
> frequency,
> >>(urge to void more often up to hourly) and the feeling when you
> get the
> >>urge
> >>that ya just might lose it all if you don't go right now.
> >>
> >>I can only speculate on a possible cause. Perhaps anxiety &
> stress, perhaps
> >>a side effect of a drug, perhaps a minor bladder infection, or
> perhaps this
> >>is
> >>directly related to Parkinson's....  This symptom (with me) goes
> into
> >>remission
> >>by itself after a while and I tend to forget all about it for a
> year or two
> >>until I
> >>again experience the thrill of nearly wetting my pants in
> public.
> >>
> >>I would suggest it is on the sheet because it is something that
> should be
> >>noted and discussed with your doctor and is probably very
> treatable.
> >>
> >>I think the things to watch for are abnormalities like
> frequency, urge,
> >>leakage,
> >>volume retained, any burning sensation, any difficulty.
> >>
> >>cheers ........ murray
> >>
> >>
> >>
> >>
> >>
> >>Murray_Charters@xxxxxxxxx
> >
> >_________________________________________________________________
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