Re: Mirapex Riluzole>syncope and sleep attacks

[nancy <ds401@xxxxxxxxxxxx>]

yes please see a cardiologist or one who specializes in syncope or
autonomic dysfunction. I have orthostatic hypotension BP drops at least
15-25 points upon sitting or standing, ect) and take my blood pressure
after laying down for 10 mins, the sitting for 2 mins, then after
standing . I have someone with me when I do all three and write it for
me along with my pulse. I am suppose to do this the same time everyday,
so i shoot for the evening and afternoon.  I go to cardiac rehab which
involves stretching, the treadmill, and riding a recumbent bike or
stationary bike that keeps tabs on my pulse along with the physiologists
in a medical setting.  Exercise is extremely important and do it with
supervision and cardiologists advice.  Also, u getting enough fluids??
electrolytes?? diabetic?? As for Mirapex, I took it  and experienced
sleep attacks. I retained fluids  more than my usual from florineff. For
MYSELF only, I couldn't tolerate the drug. For some it is great!

Do take ur bp daily and tell ur doctor. Fax him/her the pressures and
pulses. Along with the times of ur drugs and amount, along with the
activity u performed, and the food u ate.

Does ur neuro specialize in movement disorders? pd and atypical pd?


Bob Anibal wrote:
>
> Suggest you consult cardiologist or vascular specialist.  Cecily had an
> episode that sounds sort of like yours - the doc called it a syncope - they
> put a Holter ( spelling ?) monitor on her which showed fluctuations in blood
> pressure.  Result ?  a pacemaker. She still falls asleep a lot in her chair
> but no more pass-outs
> Bob A.
> ----- Original Message -----
> From: "D Laird" <meruda98@xxxxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Monday, January 01, 2001 11:57 AM
> Subject: Mirapex Riluzole passing out-sleep attacks
>
> Yesterday, I passed out (voices sounded hollow and
> distant immediately before, profuse sweating on
> waking up.) Trip to ER followed - EKG and heart
> enzymes ruled out heart attack, CT scan was normal.
> I've been on Mirapex (.75 mg x 3/day) for about
> four months; possibly on Riluzole (FDA clinical trial)
> about ten months.  The ER doctor contacted my
> neurologist, who said to just continue on the
> medication, to go back to ER if another episode
> occurs, and to check back in with him Tuesday.
> (I've been diagnosed with Parkinsons' for a little
> over a year).
>
> Since I've read about sudden sleep attacks being
> a side effect of Mirapex, I was wondering if anyone
> else who has had the sudden sleep attacks could
> describe what they were like.  I wonder if my
> episode was "passing out" or a sudden sleep attack.
> Also, did your sudden sleep attacks occur immediately
> after you started Mirapex or did it happen after you'd
> been on the drug for a period of time?  Does
> anyone know if "passing out" can be a side effect
> of Mirapex or Riluzole?  Any other comments welcome.
>
> Thank you.
>
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