Re: a little frustrated/please DO NOT call Augusta now

[Ivan M Suzman <cureit@xxxxxxxx>]

Dear PIEN,

Having read Katie Wolfe's and
Camilla's new posts, I now ask the CARE and PIEN Lists
to discontinue calling Officer Stoodley's three
front office staff, unless the new attorney says it's OK.

I've  taken Katie's suggestion, and I have just
called the new attorney, and left word
for her. I don't know how she'll respond.

One   veyr important additional note, the Augusta(Capitol)
support group President had already called,
before I had ever asked the List to call.  She was told
that her call was HELPFUL to them, because Augusta does
not have enough info to understand my YOPD at
my stage: advancing faster, 15th year, paralysis-dominated type.

She told them that I am getting much worse than
even a year ago, that I cannot be alone too long,
and that it is CRITICAL that my care assessment
is not cut. She told them a lot about me- she knows
me-, and she told me that they were VERY GRATEFUL
for the additional info about me.

My losing independence and stamina is
hard to accept, but true.  I was maybe
so encouraged by the above-mentioned feedback, that  it  made me feel
that it was within reasonable limits to ask for some calls to be made.

The attorney that had originally been assigned my case only met wih
me once, back in November, and had quit working
for the Disability Rights Center January 4 or xo,
unbeknownst to me.  He is gone to Louisiana, I was told.

Katie , thank you for your time and effort.
Camillla, thanks for yours.

I still  think the whole idea that I could
be cut fro 13 to5 hours  is DISGUSTING.
How can anyone in his right mind possibly
believe that my PD is going to magically
get better??  I guess I return to the fact
that the system HATES activists., and
somehow, they want to penalize me.
Ivan
51/39/36
:-)



On Sat, 20 Jan 2001 18:21:17 EST Katie Wolfe <Tarzanliveshere@xxxxxxx>
writes:
> Ivan, does your attorney know, and approve, of your asking people to
> call