Re: Upjohn drug trail PNU-95666E

[Raymond Strand <strandra@xxxxxxxxxxxxx>]

lamjam inc wrote:
>
> Hi all.
>
> I'm 46, diagnosed with PD in January, 2001, confirmed in February.  I started 
> a Dopamine agonist drug trial (reference above) on February 26.  It runs 
> twelve weeks.
>
> My symptoms are loss of fine motor control on my left side ( I am typing this 
> with one hand).  I have a noticeable limp.  I am tired all the time.  Folding 
> socks is tough, etc.  I have no tremors.  I have suspected Parkinson for 18 
> months (it took awhile and 3 GP's to get diagnosed).
>

Your symptoms sound a lot like mine.
I have had to type of one-handed many times.
Now I use voice recognition software.

Because you are in a drug trial,
It may not be a good idea
to anticipate or have expectations
of what the drug will do.
I suppose that  having expectations
would influence a placebo effect.

Just hang in there for the duration of the study.

When this study is over --
your neurologist can try to relieve the your symptoms.
Being newly diagnosed, it is a difficult time,
and then taking part in this study on top of it--
you are to be commended for your efforts.

best wishes,

Ray


> Does anyone have experience with this drug trial?  I am getting one of five 
> does levels (maybe placebo).  I am trying to set my expectations for symptom 
> relief.  How about similar symptom relief data with Miraplex?
>
> Thanks.
>
> John A. Maurer
>
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--

                                 Ray Strand
                             Prairie Sky Design
 -----------------(   on  the Edge of the Prairie Abyss  )---------------
                          when  the  sky  is  clear
                            the ground is visible

                     49/dx PD 2 yrs/40? onset/retired

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