Re: "The Big Lie" - cross-posted

[Schaaf Angus / Meadow Creek Ranch <sangusr@xxxxxxxx>]

Ervin,
     It has been a while ..... I'm still  off the sinemet and  eldeprenel,
and cooking right along. Really keep improving within certain bounds - I
upped the  Q-10 a bit and unless stressed, the tremors are gone.

Have you  found anything that is helping you? - there is no way that I would
go back, Rob
----- Original Message -----
From: "ervinmccarthy" <ervinmccarthy@xxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Monday, July 09, 2001 2:26 PM
Subject: Re: "The Big Lie" - cross-posted


> Hello Rob.  How are you doing on your vitamin regime?
> I take it you still do not use Sinemet?  You mentioned doctor Perlmutter.
I
> used to go to him when I was in Florida for the winters.  He is a good
> neurologist.
> ervinmccarthy@xxxxxxxx
> ----- Original Message -----
> From: "Schaaf Angus / Meadow Creek Ranch" <sangusr@xxxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Saturday, July 07, 2001 6:41 PM
> Subject: Re: "The Big Lie" - cross-posted
>
>
> > Dear Janet .
> > Wow , what a mouthful.  How right you are. The neuros know so little
> because
> > they dont take the time to understand the biochemistry of PD. Oh, the
poor
> > dears were so rushed through med school , so why take the time now. Who
's
> > going to pay them to get educated now . They already have the shingle to
> > PRACTICE.
> > The pharmaceutical houses sure arent going to bother educating the
> public -
> > they would lose too much in revenue if they did that.
> > For over  20 years the information on PD symptom relief has been out
> there-
> > just check NIH ,Medscape, etc. on the net. Dr Perlemutter runs a
symptomic
> > relief program thats helps NOW instead of waiting for all of the
promiises
> > of the CURE.  Dr. George Birkmayer didnt just fall of the turnip truck
> with
> > good relief for the PD victim without causeing the harm that Sinemet
does
> to
> > the brain.
> > We dont have to be victimized by ill-informed doctors who practice.
> Just
> > read the net ! It is out there.  Relief!!    Rob
> >
> >
> > ----- Original Message -----
> > From: "janet paterson" <janet313@xxxxxxxxxxx>
> > To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> > Sent: Saturday, July 07, 2001 3:12 AM
> > Subject: "The Big Lie" - cross-posted
> >
> >
> > > hi all
> > >
> > > the following is cross-posted from the mgh pd webforum
> > >
> > > janet
> > >
> > > ----------------------------------------------------------
> > >    Author      Topic:   " The Big Lie "
> > >    Chy7        posted 07-07-2001 12:14 AM
> > > ----------------------------------------------------------
> > > Many doctors tell their new PD patients, don't worry you
> > > don't die from Parkinson's Disease. I just read dozens of
> > > people's remarks on the Stem Cell Petition who say
> > > otherwise. You may die from something else before PD gets
> > > you but as of now it is going to get you someday. Chy7
> > >
> > > ----------------------------------------------------------
> > >    lc_lil      posted 07-07-2001 12:40 AM
> > > ----------------------------------------------------------
> > > Hey Chy,
> > >
> > > Dropping in to cheer us up eh? Well another big one was
> > > the "cure in 5 years"; hope the new and extended
> > > prediction of "cure in 10" isn't. But hey they have good
> > > intentions.
> > >
> > > lil
> > >
> > > ----------------------------------------------------------
> > >    Chy7        posted 07-07-2001 01:02 AM
> > > ----------------------------------------------------------
> > > I knew you would be first. Also 3 years left on the 5 it
> > > is going to happen wait and see.
> > >
> > > ----------------------------------------------------------
> > >    LynnZ       posted 07-07-2001 04:18 AM
> > > ----------------------------------------------------------
> > > Why do so many neurologists know so little about PD?
> > >
> > > ----------------------------------------------------------
> > >    janet313313 posted 07-07-2001 04:36 AM
> > > ----------------------------------------------------------
> > > neurologists are 'victims' of the same lack of
> > > parkinson's awareness that has shrouded us all
> > >
> > > until 10 years ago or so
> > > there was no public disclosure of pd
> > >
> > > people with pd concealed their symptoms while they could,
> > > and when they couldn't, they went into hiding,
> > > figuratively and literally
> > >
> > > put it down to shame, despair, embarrassment, lack of
> > > acceptance, clinical depression, lack of support etc
> > >
> > > levodopa, the gold standard for symptom relief, was only
> > > discovered to be effective with pd 30-ish years ago
> > >
> > > we are all still learning how to best make use of it,
> > > plus all the other meds and procedures which have come
> > > along since
> > >
> > > hiding pd in the closet may bring some comfort to those
> > > tied up in shame knots,
> > > but dragging it out into the light is the only way to
> > > dispel ignorance, encourage better support and
> > > treatments, and raise awareness and demands for research
> > >
> > > and dragging pd out into the light is precisely what we
> > > are doing here and now
> > >
> > > janet
> > >
> > > ----------------------------------------------------------
> > > 
> > >
> > >
> > > janet paterson: an akinetic rigid subtype, albeit perky, parky .
> > > pd: 54/41/37 cd: 54/44/43 tel: 613 256 8340 email:
janet313@xxxxxxxxxxx
> .
> > > snail mail: 375 Country Street, Apt 301, Almonte, Ontario, Canada, K0A
> 1A0
> > .
> > > a new voice: the nnnewsletter: 
.
> > > a new voice: the wwweb site:  .
> > >
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