Re: What is the difference ?

[Linda J Herman <ljherman1@xxxxxxxx>]

Dear listmembers,
It was heartening to read all the messages about the Parkinsn list  -
each one building on what someone else had written and each one adding
more insight and understanding to the  debate. I  think Bernie's and
Kathleen's comments summed it all up  --
Bernie wrote:
> The list is for PEOPLE with Parkinson's, and not Parkinson's  Patients.
>>
and Kathleen wrote:
>It is interesting and encouraging that this debate, which
> grew out of dialogue tinged with acrimony, is giving rise to so many
> moving and heartfelt statements of community.
>Maybe John did us a service in helping us see who we are.>>

Lorraine's comment expressed exactly some  of the feelings i have also
been struggling with. She wrote about the impact on PD:

<< To me it's even more than that, as I feel there is not an important
part that isn't
affected.Frankly, I almost feel guilty, but  funding for research is
still needed.The needs are
there just as much and the answers for a cure haven't changed. We
certainly
know what delay and lack of funding cause.
Well I do believe it is important to get on with our lives as much as
possible, but we certainly shouldn't deny the impact this horrendous
terrorism has had on us.>>

I spoke with a Parkinson's researcher yesterday who said  her research
team was applying for a Michael J. Fox Foundation fast-track grant ( btw
it  was great seeing him on Spin City again last night!  :). She said
that they expect  much of the U.S. government funding for medical
research will dry up.
My question to  the group is  -- where do we go from here?
Best to all,
Linda

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