Re: Leg pains - arthritis? Morning crawl/ Dancing With Your Neuro

[David Moreland <davelm43@xxxxxxxxxxxxxxx>]

At 05:58 AM 11/17/01 -0800, you wrote:
Dave Moreland here 58/dx 14 ,Palidotomy,1995. I am now taking sinamet
50/200 cr,
Pramipexole 1.5 mg/ entacapone 200mg, 4 /tid; Amanadine, 200 mg 2/tid;
carbidopa/levodopa 25/100 6 /tid;  atenolol 50 mg 1 /tid. This mix works
for me , I have tried just about ither combimation of pills or what ever My
day is pretty seamled. although i fall a lot. The worst injury I have
sustained from a fall is a broken index finger on my left hand, then iget
an iccasional skinned knee. I know all the steps tothe dance and i don't
dance it very gracefully.


>Judith-Good to hear from you. Having done the
>Which-Agonist-Is-Right-For-Me Dance, I sympathesize. For I,
>too, cannot manage on just Sinemet. Too stiff. Have been on
>most of them. Permax left me breathless. ReQuip was
>particularly memorable, since it made me uncomfortably
>close to crossing that staff-client line, and becoming one
>of of my psychiatric patients. So difficult, finding the
>right mix of meds for YOU. Because while each of us has the
>same disease, or some version thereof, each of us has a
>body chemistry that is uniquely our own. Making our
>response to any given drug...unpredictable, at best. AND
>the drugs we need  to take are, by their very nature,
>powerful and mind-altering. Makes me want to say to my
>neuro, you go FIRST.I used to say  to say things like that
>to him until I found out: #1, He has absolutely no sense of
>humor, and #2, He looked at me as  though I was a candidate
>for a mini-mental exam. Liked the article. Feel better
>soon.
>Take care, also.
>Carole
>
>--- Judith Richards <judithr@xxxxxxxx> wrote:
>> Hi Carole,
>>         It's been ages since I heard from you, but then I
>> haven't been posting
>> or writing much.
>>         I've started back on Permax. I was on it before
>> but on a very low dose.
>> In February I came down with the flu...a bad one that
>> kept me in bed for
>> three days. After that my PD and meds went completely
>> out of whack.  I
>> told both my family and my then neuro. I don't know if it
>> was just a
>> coincidence or what. Of course the docs didn't know
>> either.
>>         When I saw my neuro in May, after  some
>> discussion, he decided to put
>> me on Requip instead of increasing the Permax. Around the
>> 3  - 6mg
>> point I told the neuro that I didn't think Requip was
>> working and I felt
>> generally unwell most of the time. He said "we won't call
>> it a failure
>> until we hit 16mg a day. Well, we it hit 16mg and went up
>> to 18mg and
>> finally 20mg. By then I was having hallucinations, panic
>> attacks and the
>> muscle spasms were just a bad, if not worse.
>>         He finally weaned me off Requip, but then during
>> my last appointment
>> (with meds working beautifully) he said he couldn't give
>> me anything
>> because I was doing so well on just the Sinemet.
>>          Both my husband and I told that the Sinemet only
>> lasted for two hours
>> and then the rigidity would set and the pain would start
>> all over again.
>>         However, he insisted that the spasms were not PD
>> related and then said
>> we were to my Sinimet in half and come back to see him in
>> two weeks. I
>> knew I couldn't possibly function or stand the pain that
>> would surely be
>> there.
>>         Fortunately I was able to contact another neuro
>> and am now under their
>> care. Things 'seem' to be improving but it's a slow
>> process titrating to
>> the level where they want me to be.
>>         I hope things improve for you. Just remember,
>> they may be the doctors
>> and have all the credentials, but they don't know your
>> system as well as
>> you do.
>> Take care,
>> Judith
>>
>> BTW--I mailed Dr. Lieberman's article to the neuro.
>> Perhaps it will save
>> some other poor soul from going through what I went
>> through.
>>
>>
>> >>Have had an agonizing similiar experience. Find I need
>> the
>> Sinemet for strength, but one of the agonists for muscle
>> spasms. I sometimes wish I could wish PD on several
>> neurologists I know for just a day. Walk a mile in  my
>> shoes, etc.
>> Carole<<
>> --
>> Judith Richards, London, Ontario, Canada
>> judithr@xxxxxxxx
>>                         EASE THE BURDEN
>>                                 FIND A CURE
>>
>>
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Yours and His
David L. MORELAND

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