Re: tremors and surgery

[Phil Tompkins <philtomp@xxxxxxxxxxxx>]

Hello,

On 17 Nov 2001, at 23:07, Kathy Greis wrote:

> i've never posted a messege before ...

Welcome!

>  ... I'm taking Sinemet CR 50/200 6x/day, Mirapex 0.5mg 6x/day,
> Comtan 200mg 6x/day, Norvasc 2.5mg /day and now premarin .625mg
> /day.

> ... does anyone else have alot of off and on with their meds? It
> doesn't seem to matter if I take them exactly on schedule, I am
> either very ridgid and full of tremors or have too much and having
> dyskinesia.

I had dyskinesia with Sinemet CR.  It seemed to me that the CR was
releasing too much levodopa over too short a period.  My current
neuro switched me to regular release, and this reduced dyskinesia
significantly.

Do your off periods seem worse for the next dose following a meal and
in proportion to the amount of protein or fat ingested or the size of
the meal?

Is your neuro a PD or movement disorder specialist (MDS)?  If so, and
your diet and meds are tuned to the max, have you discussed the
possibility of DBS?

If you'e not seeing a MDS, it might be a good idea to consult one
about whether your sinemet dose is too strong and/or you would do
better with regular release.

> My neuro just keeps telling me to keep up with exercise, when i
> can, and theres hope around the corner for new treatments in the
> coming years. I'm tired of waiting and think i'm starting to get
> depressed.

Hang in there, and let us hear from you more often.

Phil Tompkins
age 63/dx 1099

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