Re: New members; Julian and Emily

[Emily and Julian Brinac <jeimages@xxxxxxxxxxxx>]

Paul, I am very interested in your medical trial in Philadelphia, which, is of 
course too far for us. Would you be willing to share the nature of medical 
trial, the mandate, etc. Would you give us some follow up. Also if not to 
personal, how long you have had Parkinson and in which stage you might be in 
now that you decided for this trial?
Emily
  ----- Original Message ----- 
  From: Paul Lauer 
  To: PARKINSN@xxxxxxxxxxxxxxxxxxxx 
  Sent: Wednesday, December 26, 2001 8:21 AM
  Subject: Re: New members; Julian and Emily


  Hi again: Just reading my mail and noted my latest post from Acurian, an
  interesting web site which among other things advises on clinical trials
  underway (and possibly to join) throughout (at least) the US. I don't know if
  Canadian test sites are included
  or if there is perhaps another service covering similar info for Canada.
  Murray who wrote an excellent post to you earlier stressing the need to be
  proactive (among other things) is the acknowledged master of the web
  searchers on this list and if there is a Canadian Acurian equivalent, Murray
  will know of it or can find it.

  I tend to look at the trials which are testing neuroprotective drugs - those
  which address the progress of the disease as opposed to addressing symptoms -
  and I actually joined one in Philadelphia which might be too much of a trip
  for you (if not, ask and I will furnish contact details).

  There are other lists available once you settle in to Internet use against
  your disease. One is for caregivers (CARE), one is for comic relief
  (SPARKLE), and others such as PD Recoverers suggest alternate treatments and
  ways of thinking about the disease. As must be obvious by now, just ask if
  you want to know something. Or duck when some of us (moi?) start providing
  you with more than you care to know.

  Paul H. Lauer

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