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Re: FIRST TIME USERS


thanks for the input... here's a couple of other questions for the group.

1. The last few nights I've really had a hard time sleeping.  I wake up
2 and sometimes 3 times.  Last night I woke up at 12:30 after going to
bed at 8:45 (I was really tired after helping coach my son's little
league team) and stayed awake until about 4 AM.  It was like I was
having an anxiety attack, heart pounding and all.  What's up???

2.  My wife thinks I'm depressed and need to ask my Dr. about the need
for an anti depressant.  She says I hardly ever laugh, smile, and am
fatigued.  I tell her that those are PD symptoms and that I'm not
avoiding people or "sleeping to escape," so I probably am not clinically
depressed.  Sure, I get down sometimes because of my situation but...  I
don't know.  It's kind of a two edged sword.  I want to be up, and feel
good.  On the other hand, it's just one more medication to pile onto all
the other stuff I'm loading into my body, one more sign that I'm at the
mercy of something I can't control.

Scott

On Monday, March 11, 2002, at 05:43 AM, Bettyjo Blauner wrote:

Dear Debra  and Scott and group,

How well I remember getting diagnosed. You are relieved to know but then
fearful as to your future.  You must have a neurologist who; is
approachable
as it is very hard getting used to the medications..Sinemet causes
nausea but
that passes.  (walking outside helped). Selegeline gave me lots of side
effects. I also had difficulty with extreme.fatigue when working as a
home
health speech therapist.  I almost drove  off the road a number o;f
times and
would never advise anyone t;o drive when n;ot alert.  I worked for 7
years
after being di agnosed before I was able to get SSDI as well as my
private
disability insurance. That was the most difficult job I have ever
completed
I finally convinced them that stress caused a decrease in my ability to
concentrate to write reports , talk to; doctors, travel , and even
complete a
session..  I used to fall asleep and fall off the table if I was
leaning on
my arm. I also found myself crying frequently until I began an
antidepressant.  I have tried several and am now doing well on Zoloft.

I would love to write to yo;u more but must drive my husband to work.We
will
continue another time.  I started and ran a young Parkinson's group in
Cleveland, Oh f; or 2 years.

The biggest asset my husband and I have truly, is our sense of humor.
If I
am given lemons I always make lemonade.  My husband is more cynical but
makes
jokes and constantly keeps me going.  I have found younger PDs have more
other problems including fear of their future in the work force and
fear; of
telling others.  I am very much up front and put others at ease If you
laugh
at yourself then yo;u beat others to it.  ..
. Bye for now,
   Betty Jo; ( Please excuse my typos)

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