Re: FIRST TIME USER

[Debra Sutton <nhisimage@xxxxxxxxxxxx>]

Ron, You're right - prayer IS a big help.
Debra
----- Original Message -----
From: "RON HEIMBACK" <rtheimback@xxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Sunday, March 10, 2002 10:17 PM
Subject: Re: FIRST TIME USER


> Hi Helen,
>
>     First let me explain that I am the care giver, my wife is the
> Parkie.  I am 72 and she is 71.  She has had Parkinsons for over 20
> years and until last year we were able to control this nasty disease
> with meds.  Sinemet, Comtan, and Permax along with much trial and error
> with other Parkinson medication.  As you know, no two Parkies react the
> same so trial and error becomes a way of life.  Fortunately we have had
> Neuros who allowed and even encouraged us to experiment with different
> meds.   For the past year the on and offs have become erratic with
> longer and longer off time.  She has been taking this medication 5 or
> more times per day.    Her main problems are tremor and freezing when
> she is off.   Now days, sometimes the medication gives no relief even if
> doubled.  When she feels cold, I know that she is going into off mode.
>      We were very fortunate to discover the medical team at St. Johns
> Hospital in Oxnard California and she is now scheduled for DBS next
> week.  We have high hopes for this operation as we have witnessed the
> results.  She was evaluated as a prime candidate for DBS.
> Unfortunately, not all are able to qualify as there are many flavors of
> Parkinsons.
>        I hope that this is useful to you and anyone else reading this
> note.  I posted to the list so more people can read about our experience
> and perhaps gain from it.  I offer this only as a statement of our
> experience [we have a lot of that] and am not trying to give medical
> advice.  For the past several years I have surfed the net for any and
> all information on Parkinsons and DBS.  There is a great deal of
> excellent information out there for anyone who is interested.
>        Prayer is also a big help, so believe it.
>
> Ron Heimback
>
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