Re: DBS

[Patricia Lewis <radon@xxxxxxx>]

Toni (I really need to get to bed, but just one more....)
    After my husband's first pallidotomy he experienced something very strange 
also.  We tried to figure it out - loss of cognition or loss of thought 
analysis.  Problem solving - that's it.  We figured it was due to bruising and 
swelling.  It worried us alot - but did pass (can't even remember how long that 
lasted).  It's really crappy when you leave a hospital without any instructions 
of what to expect and who to contact.  We were, however, happy with the surgery 
results and he has had a second pallidotomy - oh almost exactly 1 year ago this 
week.  I do think the depresssion he is experiencing for the last 8 months or 
so could be from the surgery.  He never had a hint of depression till post 
surgery - but who knows, could be coincidental too.  Again, we're still happy 
with the surgery.
    Does the DBS sensor have any type of fine tuning mechanism?  I'm inclined 
to say it is too soon, but the symptoms must be frightening and potentially 
harmful.  Sorry to hear.
  ----- Original Message ----- 
  From: Toni Watts 
  To: PARKINSN@xxxxxxxxxxxxxxxxxxxx 
  Sent: Tuesday, March 12, 2002 11:06 PM
  Subject: DBS


  I have been reading all the mail on this list for a few months but have not 
replied or added comments.  I am now asking for any information on post DBS.  
Because of all the good things I learned about DBS on this site, my father had 
the surgery recently at Oxnard, CA.  The first surgery went very well.  After 
the second side was done (on Feb 26), he has been experiencing a lot of 
aggitation and we feel that his personality seems so different.  At first, he 
was very quiet and nonmoving, but now he has bouts of anger.  Tonight, he 
wanted to go out and he got in the car demanding he could drive.  (He hasn't 
driven for about 8 years; he is 76 years old).  He has had hallucinations about 
talking to his mother and gets angry at my mom.  He just doesn't seem like he's 
with us and I was wondering if anyone else has experienced this kind of effect 
after surgery.  He had an MRI last week and there is no bleeding or abnormal 
swelling.  I'm trying to convince my mom that it will just take some time, but 
she doesn't seem to believe it.  Please let me know if anyone else has had this 
type of occurrence.  Thank you, 

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