Re: Mirapex DOES OR DOES NOT Slow Progression of PD ??

[Emily and Julian Brinac <jeimages@xxxxxxxxxxxx>]

Hans,
I am not certain I am getting the entire source of information on
"slowing down PD". Not long ago, I was communicating with Dr. Lieberman
on slowing progression of PD. My perception was that there is nothing at
the moment to do this"miracle". Furthermore, some experience on rats or
other animals may not resemble the actual trials on humans. I have no
medical background, I am not a sceptic, and I do wish to believe. I
would like to know more and look forward to other comments.
Emily
----- Original Message -----
From: "Hans van der Genugten" <genugten@xxxxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Saturday, April 06, 2002 7:41 PM
Subject: Re: Mirapex DOES OR DOES NOT Slow Progression of PD ??


> Hi Jorge,
>
> Thank you for your comments regarding the article in JAMA.
>
> The posting, subjectline included, was forwarded by me from the NPF
site
> with comments by dr. Abe Lieberman. As I understand it, in dr.
Lieberman's
> view -as also can be read in the comments and answers he sent out
through
> the NPF (askthedoctor) mailinglist- this article DOES indicate that
> pramipexole slows down the progression of PD.
>
> In the opinion of many dr. Lieberman and the NPF are to be considered
as
> knowledgeble, trustworthy, reliable and objective sources of
information.
> Opposite such sources we PWP often find other opinions from other
> knowledgeble people, f.e. our own neurologist or -as in this case-
your
> view.
>
> Since most PWP are lay persons and many studies are supported by the
> pharmaceutical industry itself, we have to be able to rely on the
opinion of
> knowledgeble people representing the interests of PWP in the Parkinson
> Foundations and Associations in giving us objective information
regarding
> the conclusions of studies and consequences regarding treatment of PD.
>
> The fact remains that often opinions from different (reliable) sources
> contradict eachother, leaving the PWP in a state of distress and
confusion,
> not knowing what they should or shouldn't believe.
>
> Therefor I will send your comments regarding the JAMA article to dr.
> Lieberman and ask him for his opinion. After receiving his respons, I
will
> forward it to PIEN to discuss this matter further.
>
> Hans.
>
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