Parkinsn's Email List Message
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Re: New Member
Hi! Connie:
I would reccomend any newbie PWP to check the following site for motivation
and inspiration:
www.bangor.ac.uk/ThrivingonParkinson
Wish you good reading!
Raj
brightline@xxxxxxxxxxxxxxx
************
> ----- Original Message -----
> From: "Connie De Wolfe" <connied@xxxxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Wednesday, June 26, 2002 7:56 PM
> Subject: New Member
>
>
> > Hi,
> >
> > I'm new to this list. I found out about the list through reading the
book
> > When Parkinson's Strikes Early. I live in Vancouver, British Columbia,
> > Canada. I'm 43, single, and have no kids, no cats, and no dogs. I belong
> > the "Book of the Day Club" as I am a voracious reader. I'm also a member
> > of Mensa.
> >
> > I'm in the middle of diagnosis right now, pending the results of the CT
> > scan - but it is almost a given that it is Parkinson's. After the CT
scan
> > I will be going back to the neurologist, and hopefully begin some sort
of
> > drug therapy. I definitely have three of the four cardinal signs and
> > symptoms: bradykinesia, cogwheel rigidity, and a resting tremor - all
> > right sided for now. I also have a number of other secondary stuff
> > occurring, like my voice deciding to go hoarse in the middle of a speech
> > (which is not "fun" considering that I'm a leader in two different
> > Toastmasters clubs). My emotional state is that of being "stunned."
> >
> > The biggest struggles I'm having these days are with the lack of manual
> > dexterity and with stiffness. I struggle daily to count change when
going
> > through the checkout stand and my longhand writing is becoming
miniscule.
> > I feel like an old granny trying to get out of my chair at work or
getting
> > out of bed - stooped over and shuffling along until I get going.
> >
> > One of my biggest worries is wondering if this will proceed as quickly
as
> > it did for one of my uncles - he also had Young Onset Parkinson's; his
> > tremor was very noticeable by the time he was in his late 40s and he was
> > in a nursing home by the time he was in his early 60s. Of course that
was
> > 20+ years ago, and I'm sure he would have done much better with the type
> > of medication and surgical treatment that is now available.
> >
> > I hope to learn more about coping with this disease, and to give some
> > support to others.
> >
> > Talk to you all later...
> >
> > Connie
> >
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