Re: DBS surgery / joan holliday

[Janet Paterson <janet313@xxxxxxxxxxx>]

hi all

On Sun, 30 Jun 2002, Joan Holliday <joanh@xxxxxxxx> wrote:
>Just thought I would jump in here with my DBS results.    I also had a
>palidotomy--mine was in 1996.  At the time I didn't think it had
>accomplished very much but looking back on it I think it helped more than
>I realized.  Chiefly, it did away with the terrible jerking and it also
>served as a sort of plateau when I didn't get any new symptoms for a couple
>of years.  That surgery which I had done in Toronto by Dr. Lozano was a
>piece of cake compared to the DBS which was done at Cleveland Clinic by Dr
>Razai.  I liked both my surgeons and thought both of them were very skilled.
>It seems to me that the DBS is more taxing on the patient--at least I did
>not react as well.  After the initial surgery I was  hospitalized for a week
>and waited 3 or 4 additional weeks for the implementation of the generators.
>Last Tuesday we finally got down to the process of getting them set and
>finding how much improvement had been realized.  Next, I will see a Buffalo
>doctor who will build on these initial settings.  I really have just two
>improvements so far--my freezing when I walk has been eliminated (I don't
>walk well and I still need my walker but it doesn't take me as long to get
>somewhere) and  can get out of a chair easier.  I am looking forward to some
>hand improvements also. If you  have any questions please ask
>Joan Holliday joanh@xxxxxxxx

hi joan

long time no see!
and it's interesting to hear your update on your surgeries.
would you like me to update your hole-in-the-head-gang webpage?

janet

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