Re: Question 2

[vmehra <vmehra@xxxxxxxxxxxxxxx>]

Hi Emily,
Well I was reading an article in which it was mentioned that the a lot of
people who suffer from disability view genetics with suspicion.
That is what I wanted to confirm with people in this list. Do people who
suffer from a disease welcome genetics or are they apprehensive of it?
Take care
Lavanya


----- Original Message -----
From: "Emily and Julian Brinac" <jeimages@xxxxxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Tuesday, July 23, 2002 4:14 AM
Subject: Re: Question 2


> Vhemra,
> Are you saying that genetics can have negative implications on society?
> Are you thinking that people that would not comply to genetic advances
> may be unfavourably looked by many members of society? Do you think that
> science will be the future "God", or something like God depending on the
> religion?
> Also where do we draw a disability opinion as opposed to disease? PD has
> a disability factor but it is also a progressive disease. In my opinion
> you have raised many questions; many questions that make us think what
> tomorrow may bring.
> Emily
> ----- Original Message -----
> From: "vmehra" <vmehra@xxxxxxxxxxxxxxx>
> To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
> Sent: Monday, July 22, 2002 2:32 PM
> Subject: Question 2
>
>
> > Hello All,
> > This is a second addition to my first mail.
> >
> > This is what I mean by genetics invariably creating not a disease free
> > society but a disabled free society. Tom Shakespeare wrote in the
> article
> > " Losing the Plot"  that for this reason the disabled view genetics
> with
> > suspicion.
> >
> > "For example, research recently showed
> > that the availability of screening for Down's Syndrome has changed
> > the ways in which many people regard children with Down's
> > Syndrome.  So, if you see a family with a Down's Syndrome child in
> > the street, you now think, well why didn't they avoid that?  Why were
> > they irresponsible?  What went wrong?  It's their fault.  And maybe
> > you even think, well the Welfare State or the insurance company
> > shouldn't have to pay.  So, although in theory this research may not
> > have negative implications for disabled people, in practice the social
> > consequences may be less tolerance. "
> > --Tom Shakespeare
> >
> > Does anyone share this fear of genetics?
> >
> > Take care
> > Lavanya
> >
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