Re: Raylilyn's idea/help

["Carole K. Menser" <ted@xxxxxxxxxx>]

However, my feeling is that people need to understand what
life is like for the regular folks that have had their lives changed by PD,
both those afflicted and their families.

Well said, Pamme, and so true.  The broader picture of how families and
loved ones can be affected tells the whole story of the disease.

Carole
Still the spouse of PWP Ted -- much to some folks chagrin  :-)


-----Original Message-----
From: Peeblet@xxxxxxx <Peeblet@xxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Date: Wednesday, November 13, 2002 6:24 PM
Subject: Re: Raylilyn's idea/help


>All everyone can do and continue to do is to contact media of all types and
>urge them to focus on Parkinson's Disease.  I have contacted several
leading
>publications regarding PD and shows such as Oprah.  WIth the media
attention
>on celebrities with this disease, at least people are more familiar with
what
>PD is all about.  However, my feeling is that people need to understand
what
>life is like for the regular folks that have had their lives changed by PD,
>both those afflicted and their families.  It's not just PD either. It's all
>the chronic illnesses that have overtaken the lives of so many. Perhaps
then,
>our health care system may actually change and address the needs of so many
>of us.
>
>Pamme
>wife of John, PWP, diagnosed at age 40, now 50
>
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