Re: Music for my neurons

[Elizabeth Wands <ewands@xxxxxxxxxxxxx>]

Yes, Yes, Yes,  I have the same thing.  It can be devistating to handwriting
and to your blood pressure.  The othe day I happened to have an appointment
with my neruo at 9:30 and an appointment with my general doctor at 11:00.  I
was a mess internally when I went to my neuro, and  not because I was
nervous or affraid.  My insides were at sixes and sevens, and my handwriting
was attrocious.  The nurse took my blood pressure and I noted that it was a
little more than usual but not alarmingly high.  When I went to my general
doctor the nurse took my pressure and it was conciderably lower.  I did note
that my internal quaking was calmed down and I could relax.  This is very
deffinately a disarming sid effect of PD.  It is not all of the time with me
but when I have it I am a mess.

So Barb, you are not alone

Your quivering, quaking cyber-sis
Elizabeth, 67/1
-----Original Message-----
From: Barbara Mallut <Barb_MSN@xxxxxxxxxxxxxxx>
To: Multiple recipients of list PARKINSN <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Date: 3. ledna 1998 14:15
Subject: Re: Music for my neurons


>Phil....
>
>I've REALLY been thinking about this topic lately (caused by necessity, NOT
>just because it's such a fun and  interesting topic!) <groan> and attribute
>the increase in dyskenesia at odd times to be S.O.P.  ( errrrrr...
"standard
>operating procedure, " for them of ya what ain't familiar with this
acronym)
>for some of us living with PD and is just another Parkinson's-related
>phenomena.
>
>Some things, m'friend, just don't always have an easy answer (tho there
prolly
>is a long and complicated medical one if'n ya really wanna search for it).
In
>my opinion, it's enough that we discuss AND acknowlege these PD-related
>anomalies amongst ourselves, bring them to light, and establish them as
being
>valid PD-related symptoms and/or quirks, mention 'em to our respective
>neurologists (who will ignore 'em, of course) <rueful grin> and THEN get on
>with life.
>
>I've found over the years, I've "mentally logged"  these odd-ball symptoms
as
>they crop up in my life and try to ANTCIPATE them BEFORE I am at a point
where
>they interfere with my daily life.   This type of anticipation has proved
to
>be a tremendous boon to my daily comfort level as it permits me to either
>avoid and/or compensate for these specific PD symptoms before they happen.
>
>(ASIDE) And I don't care WHAT them doctors say 'bout certain invisible
>Parkinson's symptoms - It's OUR own body, we LIVE in that body, and if WE
feel
>a particular symptom, then it's VALID! <stamping virtual foot
emphatically!>
>
>Barb Mallut
>barb_msn@xxxxxxx
>
>
>
>----------
>From:   Parkinson's Information Exchange on behalf of Phil Tompkins
>Sent:   Saturday, January 03, 1998 3:44 AM
>To:     Multiple recipients of list PARKINSN
>Subject:        Re: Music for my neurons
>
>Now that I think about it, I find I don't understand the increase in
>dyskinesia I reported experiencing when concentrating on a complex
>physical task such as playing an unfamiliar piano piece.
>
>Several people mentioned effects of an increase in stress or
>excitement.  I have experienced increased tremor in such situations,
>such as during an engaging movie scene, or even when beginning a
>meal!  I associate increased tremor with insufficient dopamine, but
>dyskinesia, based on what I've read, is the result of too much
>dopamine.
>
>Perhaps what I'm experiencing is just an increased awareness of
>dyskinesia, because it interferes with trying to achieve better
>physical control of my movements.  It's my body, but I guess I don't
>necessarily have a good handle on what it's doing.
>
>Phil Tompkins
>