Re: Music for my neurons

[Jimmy Hsu <jhsu@xxxxxxxxxxx>]

I was a victim of SPAM. Can you tell me how to unsubscribe from this group?
Jimmy
-----Original Message-----
From: Elizabeth Wands <ewands@xxxxxxxxxxxxx>
To: Multiple recipients of list PARKINSN <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Date: Sunday, January 04, 1998 6:27 PM
Subject: Re: Music for my neurons


>Yes, Yes, Yes,  I have the same thing.  It can be devistating to
handwriting
>and to your blood pressure.  The othe day I happened to have an appointment
>with my neruo at 9:30 and an appointment with my general doctor at 11:00.
I
>was a mess internally when I went to my neuro, and  not because I was
>nervous or affraid.  My insides were at sixes and sevens, and my
handwriting
>was attrocious.  The nurse took my blood pressure and I noted that it was a
>little more than usual but not alarmingly high.  When I went to my general
>doctor the nurse took my pressure and it was conciderably lower.  I did
note
>that my internal quaking was calmed down and I could relax.  This is very
>deffinately a disarming sid effect of PD.  It is not all of the time with
me
>but when I have it I am a mess.
>
>So Barb, you are not alone
>
>Your quivering, quaking cyber-sis
>Elizabeth, 67/1
>-----Original Message-----
>From: Barbara Mallut <Barb_MSN@xxxxxxxxxxxxxxx>
>To: Multiple recipients of list PARKINSN <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
>Date: 3. ledna 1998 14:15
>Subject: Re: Music for my neurons
>
>
>>Phil....
>>
>>I've REALLY been thinking about this topic lately (caused by necessity,
NOT
>>just because it's such a fun and  interesting topic!) <groan> and
attribute
>>the increase in dyskenesia at odd times to be S.O.P.  ( errrrrr...
>"standard
>>operating procedure, " for them of ya what ain't familiar with this
>acronym)
>>for some of us living with PD and is just another Parkinson's-related
>>phenomena.
>>
>>Some things, m'friend, just don't always have an easy answer (tho there
>prolly
>>is a long and complicated medical one if'n ya really wanna search for it).
>In
>>my opinion, it's enough that we discuss AND acknowlege these PD-related
>>anomalies amongst ourselves, bring them to light, and establish them as
>being
>>valid PD-related symptoms and/or quirks, mention 'em to our respective
>>neurologists (who will ignore 'em, of course) <rueful grin> and THEN get
on
>>with life.
>>
>>I've found over the years, I've "mentally logged"  these odd-ball symptoms
>as
>>they crop up in my life and try to ANTCIPATE them BEFORE I am at a point
>where
>>they interfere with my daily life.   This type of anticipation has proved
>to
>>be a tremendous boon to my daily comfort level as it permits me to either
>>avoid and/or compensate for these specific PD symptoms before they happen.
>>
>>(ASIDE) And I don't care WHAT them doctors say 'bout certain invisible
>>Parkinson's symptoms - It's OUR own body, we LIVE in that body, and if WE
>feel
>>a particular symptom, then it's VALID! <stamping virtual foot
>emphatically!>
>>
>>Barb Mallut
>>barb_msn@xxxxxxx
>>
>>
>>
>>----------
>>From:   Parkinson's Information Exchange on behalf of Phil Tompkins
>>Sent:   Saturday, January 03, 1998 3:44 AM
>>To:     Multiple recipients of list PARKINSN
>>Subject:        Re: Music for my neurons
>>
>>Now that I think about it, I find I don't understand the increase in
>>dyskinesia I reported experiencing when concentrating on a complex
>>physical task such as playing an unfamiliar piano piece.
>>
>>Several people mentioned effects of an increase in stress or
>>excitement.  I have experienced increased tremor in such situations,
>>such as during an engaging movie scene, or even when beginning a
>>meal!  I associate increased tremor with insufficient dopamine, but
>>dyskinesia, based on what I've read, is the result of too much
>>dopamine.
>>
>>Perhaps what I'm experiencing is just an increased awareness of
>>dyskinesia, because it interferes with trying to achieve better
>>physical control of my movements.  It's my body, but I guess I don't
>>necessarily have a good handle on what it's doing.
>>
>>Phil Tompkins
>>