Re: Lopsided symptoms

[Barbara Mallut <Barb_MSN@xxxxxxxxxxxxxxx>]

Joan....

That's a real bummer to have had the one successful pallidotomy and then find
that the second one caused the return of  PD symptoms to the side that had so
benefited from the original surgery.  YUCK!

FYI....I know that Dr. Robert Iacono, in Loma Linda, Calif., phone (909)
792-8188, has performed a number of successful "corrective" pallidotomies for
those who have had less than satisfactory surgeries in the past.

You might want to look into that, and can do so on his Web site which is
located at:  http:/www.pallidotomy.com

Barb Mallut
barb_msn@xxxxxxx










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From:   Parkinson's Information Exchange on behalf of Stan Snyder
Sent:   Tuesday, June 30, 1998 2:26 AM
To:     Multiple recipients of list PARKINSN
Subject:        Lopsided symptoms

Hi Michael: I have always considered myself to have the best of both
worlds: my right side had tremors & my left side was frozen; my kids
would ask to play  Peter Pan but only if I would be Capt. Hook! They
would say (bless the little darlin's) that my face was on crooked.  So
you can imagine my happiness & joy after my first successful
pallidotomy! He went in on the right side to fix my left side. The
rigidity was gone; my arm and hand were at peace, my left foot didn't
drag all gimpy behind. I was able to reduce my sinemet somewhat, but was
always bothered by the fact that I had to medicate my seemingly healthy
side-I explained it to my surgeon this way: it felt like I  had had half
a "boob-job"! Unfortunately, I wasn't able to enjoy this sensation for
very long. In a weird turn of events, my second pallidotomy, while
nearly killing me, brought back all the symptoms that I thought were
cured from the first-threefold! So now, I'm back to having the best of
both worlds-again!   Best, Joan