Re: NON-PD ??? NON-PD Questions of PD/Doctors, mental illness,

["Nancy D. Mullen" <ds401@xxxxxxxxxxxxxx>]

Gina,

I think it is very upsetting for a husband  to see their wife with a 
neurological
disease and visa versa.   My spouse responded in the same exact sentence of "you
(meaning me) can't be fixed."  Naturally, I had to reply:) by saying 'I may not 
be
able to be fixed, but I can be mended.'  Mended meaning that some of the 
symptoms
are treatable, but the can not be cured now.  I understand what my husband
meant.   I have a certain amount of energy and I have to decide how to spread it
out.

Smile:) I know it is hard to do at times, but to me it is one of the best meds 
and
it's free!

That's all for now.

Nancy:)              aka/Angel_3 on the parkie channel  ( the other Nancy M :))

Gina Cass. wrote:

> Hi Dennis:
> How are you?  How is the weather your way?  It is so hot (Indiana) here.  And
> I am so hot.
> My feet and legs are so swollen, the skin is shiny.  It looks like it has been
> burned, sun, tanning booth, etc.  I am so disgusted with these doctors. The
> Psy told me that about 15 years ago he had a real run in with my GP.  Over a
> patient over meds and this rift has gone on forever.  Well, I am tired of
> feeling so bad, that I did send an email to Rush-Presbeterian-St. Lukes
> Medical Center in Chicago Illinois.  That is where I was diagnosed, but the
> doctor died 2 months later.  He was a research Doctor with the speciality of
> Parkinson's Disease.  What luck!  LOL not with humor. It sent this email to
> them asking for a new Doctor in Rush.  Or if they could make a referel close
> to where I live.  I need a PD Doctor. I have always believed that my dentist,
> doctors, pharmcist all of them were looking out for me.  No, I think they are
> looking out for their money.  So, what say I love myself enough to find a good
> doctor maybe 3 and stand up for my rights.  Sounds like a plan.  I really
> never got any news or literature from these doctors here for Parkinson's.  I
> have even gone to the GP for almost 30 years. I keep sending for pamphlets,
> books, literature.  I need to have answers but yet I can get more meds just no
> answers.
> I told my GP that this started at least 10 years ago.  Had a very horrible
> backache. Couldn't walk stand, bend over nothing, went to the hospital, GP met
> us there, admited me for 7 days.  I had every scan, x-ray, etc, but no one
> knew what this was.  There were no answers.  Well, I believe that the answer
> has come.  They thought stone, (Kidney, gall, every kind of stone in the
> world, was it a female problem, that seems to always come up. LOL Before it
> was just in my head.  Now with things dying, and gushing out of my brain its
> not all in my head anymore.
> This is a mess.  Kinda like the Non-PD or PD mess.  Gosh that really woke up a
> few people.
> I hate this disease and what goes along with it.  My grandaughter asked me
> "Grandma why do you shake".  I told her I was sick. OK was all she said.  Why
> can't other people be that understanding.
> This is the child my oldest daughter gave up to her ex-husband.  What a doll.
> I am sorry Dennis to go on so much.  I am on the opposite end of a Manic High.
> I keep sliding down.  That along with PD is a great honor.  It's like the
> comercial of the little boy saying "When I grow up I wanna be a junkie
> (Parkinson's Person) I never dreamed oh so many years ago that I would have
> this (I didn't even know what it was) I can't walk well, food is yuck, but I
> don't loose weight, my hands shake, my head my lips, my legs, I have to watch
> so I don't fall down, get dizzy pass out, can't drive, sold my car, I get so
> frustrated.  I know I'm not alone I'm sure you have these and more problems.
> I try to explain to my husband, hes a good caregiver, he just wants nothing to
> do with the Parkinson's.  He said a while back it's because he can't fix me.
> Who can?  Maybe in time there will be something for all of us. I tried to tell
> my husband to read about this disease, No. He shows no emotion.  I have bought
> a book that Caregivers should read.  No .  I'm lost. So lost.  I tried so many
> times to kill myself. Not nice I know.  But when challenged with death It
> becomes something I must battle.  Fight the good Fight.  Well, I have
> "Chatted" enough.  You have impressed me with your knowledge of this uninvited
> visitor.  If you have any suggestions please help.   I need to gather all the
> info I can.  Because I'm not getting any from these so called men of medicine.
> TTFN  (TaTa for now)
> Gina
> Hug to you guy
> {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{Dennis}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
> Also, I have 2 schnauzers and 2 american domestic cats (just cats)