Parkinsn's Email List Message
Posting to the Parkinsn List is a benefit of Subscription
A call to act!
This is a multi-part message in MIME format.
------=_NextPart_000_0056_01BDEB83.FB3D8CC0
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Parkinson's Action Message: =
September 29, 1998=20
=20
The people of North Carolina need to contact their representatives in =
Washington DC, and especially Senator Faircloth, who is on the =
Appropriations committee. ( people with Parkinson's disease, their care =
takers and others who have an interest in Parkinson's.)
=20
WHY ?
Because in June, while attending the fifth Annual Public Policy Form in =
DC. I took a large package of petitions signed by North Carolinians in =
support of passage of the appropriations part of the Udahl Parkinson's =
Research Act. A package was given to Senator Faircloth of all the =
petitions. A second package of duplicate petitions were divided and =
given to each district representatives.
We need to be diligent, to make sure, as the committee and the congress =
broker things that passage will happen. The passage should include words =
to the effect that these funds will go direct, the full $100 million to =
direct Parkinson's Research.
We need to emphasize this because through a study, it was found the NIH =
was not fully funding Parkinson's Research. The researchers reviewed the =
actual grants the NIH counted as "Parkinson's" and found the NIH is =
padding the total with $67 million in grants not focused to Parkinson's. =
This means only about $40 million will be spent on Parkinson's -focused =
research in1999.
Congress MUST direct the NATIONAL INSTITUTE OF HEALTH to fully fund the =
Udahl Act.
While in DC, at the forum, three speakers related information about the =
research going on. Last year, the thinking was a cure in 5 to 10 years. =
This year the statement was made a cure in 2 to 4 years, all because of =
the on going research. There are three new drugs on the market this =
year.
Research is the engine that is going to deliver the cure, and it takes =
money to fuel the engine. To ensure that at least $100 million in =
Parkinson's -focused research is included in the 1999 Labor-HHS =
Appropriations Bill. Please call and or write to your representative and =
especially, to Senator Faircloth, who is on the Appropriations =
Committee.
=20
Enclosed is the AARP toll free number 1-800-361-5222 to reach the =
legislative hotline. Mailing address: United States Senate, Washington =
DC, 20510
United States House of Representatives, =
Washington, DC 20510
or your local reps. office.
=20
While in DC, I met with every NC congressional representative or their =
health aide, dropping off a packet of the latest information about =
Parkinson's Research. I related that I was from North Carolina and that =
I was at the forum on behalf of the people with Parkinson's who could =
not be there.
=20
I ask your assistance because we will all benefit. There are 60,000 =
people a year who are diagnosed with Parkinson's Disease. If each spends =
an estimated $3000.dollars a year on medicine, just figure out the cost. =
Then add the people who already have Parkinson's, the sum is quite =
large!
=20
The information I have printed in this message comes from the =
Parkinson's Action Network and the National Parkinson's Foundation
.
Finally, the Winston-Salem Support Group meets @ Highland Presbyterian =
Church, 2380 Cloverdale Avenue, Winston-Salem, the third Sunday of the =
month at 3pm.=20
=20
Work for a Cure.
=20
=20
Stephanie M Dorsch
------=_NextPart_000_0056_01BDEB83.FB3D8CC0
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
<HTML>
<HEAD>
<META content=3Dtext/html;charset=3Diso-8859-1 =
http-equiv=3DContent-Type><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 =
HTML//EN">
<META content=3D'"MSHTML 4.72.3110.7"' name=3DGENERATOR>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><FONT face=3DArial size=3D2><BR><BR> </DIV></FONT>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Parkinson's Action=20
Message:</FONT><FONT=20
size=3D3> &nbs=
p;  =
; =
=20
September 29, 1998</FONT><FONT size=3D3></FONT>=20
<DIV><FONT color=3D#000000><FONT size=3D3></FONT></FONT><FONT=20
size=3D3></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>The people of North =
Carolina need=20
to contact their representatives in Washington DC, and especially =
Senator=20
Faircloth, who is on the Appropriations committee. ( people with =
Parkinson's=20
</FONT></FONT></FONT><FONT size=3D3><FONT color=3D#000000>disease, their =
care takers=20
and others who have an interest in Parkinson's.)</FONT></FONT></DIV>
<DIV><FONT size=3D3><FONT color=3D#000000></FONT></FONT> </DIV>
<DIV> </DIV>
<DIV>WHY ?</DIV>
<DIV> </DIV>
<DIV>Because in June, while attending the fifth Annual Public Policy =
Form in=20
DC. I took a large package of petitions signed by North =
Carolinians in=20
support of passage of the appropriations part of the Udahl Parkinson's =
Research=20
Act. A package was given to Senator Faircloth of all the petitions. A =
second=20
package of duplicate petitions were divided and given to each district=20
representatives.</DIV>
<DIV> </DIV>
<DIV>We need to be diligent, to make sure, as the committee and the =
congress=20
broker things that passage will happen. The passage should include words =
to the=20
effect that these funds will go direct, the full $100 million to direct=20
Parkinson's Research.</DIV>
<DIV> </DIV>
<DIV>We need to emphasize this because through a study, it was =
found the=20
NIH was not fully funding Parkinson's Research. The researchers reviewed =
the=20
actual grants the NIH counted as "Parkinson's" and found the =
NIH is=20
padding the total with $67 million in grants not focused to Parkinson's. =
This=20
means only about $40 million will be spent on Parkinson's -focused =
research=20
in1999.</DIV>
<DIV> </DIV>
<DIV>Congress MUST direct the NATIONAL INSTITUTE OF HEALTH to fully fund =
the=20
Udahl Act.</DIV>
<DIV> </DIV>
<DIV>While in DC, at the forum, three speakers related information about =
the=20
research going on. Last year, the thinking was a cure in 5 to 10 years. =
This=20
year the statement was made a cure in 2 to 4 years, all because of the =
on going=20
research. There are three new drugs on the market this year.</DIV>
<DIV> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Research is the =
engine that is=20
going to deliver the cure, and it takes money to fuel the engine. To =
ensure that=20
at least $100 million in Parkinson's -focused research is included in =
the 1999=20
Labor-HHS Appropriations Bill. Please call and or write to your =
representative=20
and especially, to Senator Faircloth, who is on the Appropriations=20
Committee.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Enclosed is the AARP =
toll free=20
number 1-800-361-5222 to reach the legislative hotline. Mailing address: =
United=20
States Senate, Washington DC, 20510</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT=20
size=3D3> &nbs=
p;  =
; =20
United States House of Representatives, Washington, DC =
20510</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>or your local reps.=20
office.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>While in DC, I met =
with every NC=20
congressional representative or their health aide, dropping off a packet =
of the=20
latest information about Parkinson's Research. I related that I was from =
North=20
Carolina and that I was at the forum on behalf of the people with =
Parkinson's=20
who could not be there.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>I ask your assistance =
because we=20
will all benefit. There are 60,000 people a year who are diagnosed with=20
Parkinson's Disease. If each spends an estimated $3000.dollars a year on =
medicine, just figure out the cost. Then add the people who already =
have =20
Parkinson's, the sum is quite large!</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3> </FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>The information I =
have printed in=20
this message comes from the Parkinson's Action Network and the National=20
Parkinson's Foundation</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Finally, the =
Winston-Salem=20
Support Group meets @ Highland Presbyterian Church, 2380 Cloverdale =
Avenue,=20
Winston-Salem, the third Sunday of the month at 3pm. =
</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Work for a=20
Cure.</FONT></FONT></DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT =
size=3D3></FONT></FONT> </DIV>
<DIV><FONT color=3D#000000 size=3D2><FONT size=3D3>Stephanie M=20
Dorsch</FONT></FONT></DIV></DIV></BODY></HTML>
------=_NextPart_000_0056_01BDEB83.FB3D8CC0--
Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.
Mail converted by MHonArc
2.6.10
Site Hosting donated by He.net
&
Grant from The Parkinson Alliance
