Parkinsn's Email List Message

Posting to the Parkinsn List is a benefit of Subscription


[Message Prev][Message Next][Thread Prev][Thread Next][Message Index][Thread Index]

Re: NIH Public Rep Council


Phil,

The real issue is how did it happen that PD research got so under funded
and to make sure it doesn't happen again to us or another "disease
group".  My worry is what power to change things will this group have.
Will it be merely a group to be used to pacify the stir in congress about
i.e. earmarking etc. or will it be listened to in some meaningful way.

Charlie

Phil Tompkins wrote:

> This is, as it says, certainly not a position from which to advocate
> for PD, and for anyone with that as a driving concern there are lots
> of other things that need doing.  It's instead for general advocacy
> benefiting a broader public, and it may mean advocating for the NIH
> in the other direction as well.
>
> Charlie, it's great to see your enthusiasm for this, especially
> since you are qualified in so many ways.  Your message about taking a
> broader perspective looks like a start on your letter of nomination.
> I'm real glad.
>
> Phil Tompkins
> Hoboken NJ
> age 60/dx 1990

--
******************************************************************************************

Charles T. Meyer,  M.D.
Middleton (Madison), Wisconsin
cmeyer@xxxxxxxxxxxxxxx
******************************************************************************************


Parkinsn's List Subject Index

Parkinsn's List Thread Index

Parkinsn's Archive Treasures Doctors, students, patients and caregivers find current Parkinson's information such as the Algorithm, Caregivers Handbook, and talks by respected Movement Disorder Specialists.

Mail converted by MHonArc 2.6.10
Site Hosting donated by He.net
&
Grant from The Parkinson Alliance