Re: support group data base by Dale Severance

[Murray Charters <Murray_Charters@xxxxxxxxxxxxxxx>]

Hi Dale and Jeannette and all,

> Dale Severance said in part:
>
> > As many of you know   I have
> > bilt a database of pD support groups in the US. The number of listings
> various
> > from 1850 to 1950. I agreed with my self to make this information
> available to
> > anyone with a reasonable PD need.
> > I was planing to place the database on a web site for easy access to all.
> >
> > What are your thoughts on this matter.
>
> I think a website listing the support groups in the US is an excellent
> idea.  What good is your list if it isn't made available to pwp or those
> who work with and care for pwp?  I can think of no reason why a support
> group would not want this exposure unless the group leader indicated a need
> for privacy when sending you the data.  Does the database list the
> place/date/leader of each group?
>
> Jeanette Fuhr
>
The only downside of any database is it must be scrupulously
maintained so that at no time will the data be stale, misleading,
wrong, or an embarassment.  I was appalled when I discovered a paper
listing of our 40 odd support groups was posted in the movement
disorder waiting room but NEVER updated.  The listing was so old that
some of the group leaders had retired, and two had passed on more
than a year ago.  The best intent will fall flat if there is no
follow up maintenance on a planned schedule.

All the best ............ Murray
Murray_Charters@xxxxxxxxxxxxxxx