Re: on the road ... pwp style

[Barb_MSN <Barb_MSN@xxxxxxxxxxxxx>]

Hiya Beth...

Just a quick note to let ya know that I have a spare bedroom
(currently just sitting there doin' nothing but housing a few odds
'n ends (read THAT as "misc. storage").   I'm in the process of
refurnishing it as a bedroom even as I type (meaning I've been
shopping for furnishing but haven't bought yet) <but WILL be
buying very soon!>

IF you're passing thru the Los Angeles, California area - whether
overnite, a few days, or possibly even longer, you can count on me
for a roof over your head (and air conditioning!). <smile>

Drop me a private email if ya wanna discuss this further, and/or
we can go into the #Parkie chat and discuss this further.

YIPPEE!!  <BIG smile on face>  THIS'D be really NEAT!

Barb Mallut
barb_msn@xxxxxxxxxxxxx
-----Original Message-----
From: Elizabeth Leslie <bethles@xxxxxxxxxxxxxxxxxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Date: Wednesday, March 31, 1999 1:26 AM
Subject: on the road ... pwp style


>Hello Listfolk - a long time since I dropped (visibly) in here -
I tend to
>hang out on the Digest on/off these days since I got some
effective
>treatment that allows me to feel ... most of the time ... like I
still have
>a life.  But, knowing full well that nothing is certain in the
world of PD,
>I am off travelling in the second half of this year while I can
still
>muster the will and the energy.
>
>I plan to arrive in the US (west coast) with a friend (not pwp)
from NZ
>about mid/end June and to spend 1-2 months driving/hostelling
(not giving
>in to being 'packaged' just yet <g>) around US/CAN, heading east.
My
>friend is going on to the UK/EUR and I may/not decide to go with
him.
>Ideally I'd prefer to establish a base somewhere and dig in for a
bit if I
>can get a 6-month visa - this approach worked well in '95 (pre
dx) when I
>spent 5 months on the US east coast doing some research.
>
>With this in mind, is there anyone out there willing/able to
offer any
>reasonable/low cost/no cost accommodation--house-share, room with
use of
>facilities, granny flat, whatever, wherever--between, say,
July-Nov this
>year?  (I imagine several local pwp/carers and well-known
contributors to
>this list will be happy to vouch for me should you wish for
references.)
>It would be great to make contact with support groups along the
way, and
>join in where possible with exercise classes ... I'm really going
to miss
>my weekly community physio and hydrotherapy groups.  I'd also
like to meet
>up with pwp interested in non-conventional/nutritional approaches
to
>treatment/management (just read the excellent chapter on PD from
'The Brain
>Wellness Plan: Breakthrough Medical, Nutritional, and
Immuno-boosting
>Therapies' by Carl Germano and Jay Lombardo, Kensington
Publishing Corp.,
>1997, and want to follow up on some supps they recommend that are
not
>available in Australia.)
>
>I did put out a feeler within the university network for anyone
interested
>in houseswapping with me, but without success so far ... I guess
I didn't
>get my act together soon enough ... or else my situation (I live
in
>Fremantle, Western Australia) sounds just a little too antipodean
... folk
>are inclined to be fearful of falling off the edge if they come
this far
><g> ... but if you are an intrepid adventurer and would like to
know more
>about this option, please get in touch soon before I find someone
local to
>rent my place.
>
>If you'd like further info, or have any offers/suggestions/advice
...
>please contact me ... off-list (otherwise I may miss your
response).
>
>Cheers
>
>Beth Leslie
>
>55 yrs/dx '96
>
>... currently running pretty well on Eldepryl 5 mgs x 2, Madopar
100mgs x 3
>+ 50 mgs at bedtime, heaps of supplements ... and yet to discover
just how
>roadworthy this model is when she's put to the big test!
>