Re: pd organisations/support in canada

[Murray Charters <Murray_Charters@xxxxxxxxxxxxxxx>]

On  3 Apr 99 at 1:28, janet paterson wrote:

> hi all
>
> i used to live on an island with no pd support groups
> and no other parkies that i knew
> which was the main reason that the pd list became so important to me
>
> since moving back to canada over a year ago
> i have tried to connect with local pd organisations
> with little success
>
> i have joined the ottawa carleton group
> and have received little except a plea for donations
>
I joined BC PDA and receive a quarterly newsletter.  They maintain a
library of PD related books and videos which I occasionally borrow.
They are the umbrella over the 38 support groups in BC.  I've learned
to not expect too much.
>
> i have written to the parkinson foundation of canada
> in re membership and in re the stagnant condition of their website
> and have had no reply
>
Me too! ('n I usedta be a member)
>
> am i missing something?
>
Since the subject is pd organizations and support - yes, we all are.
>
> am i the only canadian parkie to receive assistance from the
> ontario disability support program?
>
'course not... mus' be lots.......
>
> sometimes i feel more alone in joining the ranks of the disabled here
> than when i lived in island isolation
>
Darling, you don't 'zactly "join" the ranks of the disabled.  They
don't have an organization and as for "ranks"...........
>
> am i expecting too much?
>
Maybe....
>
> has this list spoiled me?
>
This list never spoiled anyone  (unless you count the spoilin' you 'n
Jerry, 'n Judith, 'n Camilla, 'n all the Barbara's lay on all the
rest of us) I missed a buncha ya I know........
>
> janet
>

Janet, as you know, I don't live in Ontario, I'm not on any disabled
list yet (still working), I belong to the BC Parkinson's Disease
Association, I attend their twice a year educational meetings, I
facilitate the Early Onset Support Group, I work as a volunteer on
fund raisers, I work with computers to donate to the less fortunate,
I participate in clinical studies at the Movement Disorder Clinic,
I'm active on this list, and I visit a few Parkie shut-ins at local
institutions.

I think you are missing something.   You've forgotten that you
can do whatever you want to do.  You can join those disabled folks,
whoever they might be, or you can be janet paterson.........
my cyber sis
master of quotes
html script writer
searcher of archives
contributor to this list
assistant list mom for help
the shoulder of comfort for many
Don & Vivian McKinley's cyber brat
a virtual support group for the clinically depressed
a dynamic vital woman who can do whatever she chooses

Hugs.........................................................Murray

Murray_Charters@xxxxxxxxxxxxxxx