Re: FW: Parkinson Info.

[Kathryn Saupp <kathrynsaupp@xxxxxxxxxxxx>]

You also have a right to a second opinion if the regular neurologist is
unavailable.  Preferrably from someone who specializes in PWP, or  is at the
least certified.

-----Original Message-----
From: janet paterson <janet313@xxxxxxxxxxx>;
owner-parkinsn@xxxxxxxxxxxxxxxxxxxx <owner-parkinsn@xxxxxxxxxxxxxxxxxxxx>
To: PARKINSN@xxxxxxxxxxxxxxxxxxxx <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Date: Friday, June 25, 1999 9:33 PM
Subject: Re: FW: Parkinson Info.


>hi all
>
>At 20:11 1999/06/25 -0400, teresa wrote:
>>Can anyone help answer this man's questions?
>>
>>Teresa, Daughter of Mama (57/43/38)
>>
>>-----Original Message-----
>>From: Bandekar, Raj (PA62) [mailto:Raj.Bandekar@xxxxxxxxxxxxxxxxx]
>>Sent: Wednesday, June 23, 1999 12:10 PM
>>To: 'tvbohus@xxxxxxxxxxxxxx'
>>Subject: Parkinson Info.
>>
>>
>>Teresa,
>>
>>Here I am again trying to get some information on Parkinson Disease.
>>Thanks for all the help that you extended earlier. Could you please post
>>these questions/scenarios on my behalf to the "large email group" that
>>you belong to.
>>
>>My father age 77, is suffering from Parkinsons disease for last 9 years.
>>He has been on Syndopa (a.k.a levadopa), eldepryl and pacetone drugs.
>>His Parkinsons was under control till about past 6 months. It has been
>>very severe for the past month. In fact he is in the hospital currently.
>>It all started when he got flu 2 months back and then developed lung
>>infection into pnuemonia. The pnuemonia is under control but his
>>Parkinson has increased severely. Also recently in the past month or so
>>the doctors had introduced Bromocryptine which is an agonist. I
>>understand it is not the latest and there are other drugs such as
>>ropinerole or pramipexole or Mirapex. Could some body answer the
>>following questions?
>>
>>1) At this stage of Parkinson his body has become very rigid. He cannot
>>walk out of bed. Also he is unable to intake food naturally due to
>>rigidity of muscles in the throat. He has to be fed via nasal path. We
>>think that due to pnuemonia Parkinson might have been aggravated. Could
>>Parkinson affect throat muscles? His doctor assures us that he has hopes
>>to improvise the situation so that he may be able to take food normally
>>and walk again.
>>2) Are these new drugs better (ropinerole or pramipexole or Mirapex). If
>>so where can I find information about these. I am looking for specific
>>infomation about therapy, dosage, checmical constituents etc. on these
>>drugs.
>>
>>I would really appreciate any help.
>>
>>Thanks a lot.
>>
>>Raj Bandekar.
>>
>
>hi raj
>
>the key words in your message, for me, are:
>
>>His Parkinsons was under control till about past 6 months. It has been
>>very severe for the past month. In fact he is in the hospital currently.
>>It all started when he got flu 2 months back and then developed lung
>>infection into pnuemonia. The pnuemonia is under control but his
>>Parkinson has increased severely. Also recently in the past month or so
>>the doctors had introduced Bromocryptine which is an agonist. ...
>
>is he taking the same amount of levodopa now as he was 6 months ago?
>
>are the doctors who introduced bromocryptine the same doctors who
>prescribed your fathers' medications six months ago?
>
>i advocate getting him back to his med routine
>when the pd was most under control
>to see how he responds to that routine now
>
>'playing around' with new meds, trying this and trying that
>is a recipe for tragedy
>do not allow it
>
>your father's pd was under control
>and then he became seriously ill and was hospitalized
>
>even if his illness is cured
>he still needs to recover from the stresses involved
>
>the pd may slow that recovery
>but brain chemistry is not something to be rushed
>
>please read 'joe's story' in the PIEnet section of my website
>[url below]
>
>janet
>
>janet paterson
>52 now / 41 dx / 37 onset
>PO Box 171  Almonte  Ontario  K0A 1A0  Canada
>a new voice 
>janet313@xxxxxxxxxxx