Re: "George" interviews Janet Reno

[Joan Hartman <jmh13@xxxxxxxxxxxxx>]

> Carole H. wrote...........
I imagine she's worried about her career, or maybe
> she's in denial, BUT I wonder if she realizes the
> damage she does to PD awareness/education whenever she
> implies that Parkinson's is nothing but a damned
> nuisance? I also wonder if anybody has asked her this?

......why don't we tell her....so she can do some good while she's in
office....I  just tried to find her email address and
couldn't....can somebody who's good at search engines find her  email
address and we can let all her know what damage she's doing....and at her
levelof government, she could probably pick up the phone and talk directly
to
those politicos that are involved in holding up the Udall bill funding and
really get their vote for the funding to be put where it belongs....PD
research NOW......Joan Hartman
----- Original Message -----
From: Carole Hercun <grinchcsh@xxxxxxxxx>
To: <PARKINSN@xxxxxxxxxxxxxxxxxxxx>
Sent: Sunday, September 19, 1999 6:51 AM
Subject: Re: "George" interviews Janet Reno


> I imagine she's worried about her career, or maybe
> she's in denial, BUT I wonder if she realizes the
> damage she does to PD awareness/education whenever she
> implies that Parkinson's is nothing but a damned
> nuisance? I also wonder if anybody has asked her this?
>                      Carole H.
>
> --- Dennis Greene <dennisg@xxxxxxxxxxxxxx> wrote:
> > From the interview:
> >
> > > RENO:  Some days it does, some days it doesn't.
> > [Points to her hands.]
> > > This is the primary symptom.  Some days I get
> > stiff, but I think that's
> > > from lack of exercise in this [right} hand,
> > because of the shaking of this
> > > hand.
> > >
> > > Q:  Is that frustrating?
> > >
> > > RENO:  No.   I just think of what it must be like
> > for people who have
> > > difficulties, who stutter, who have cancer.  And
> > you think, Gosh, I'm
> > > fortunate.
> >
> > Wouldn't it be nice if high profile PWP still
> > fortunate enough to be
> > exhibiting early or early middle stage PD would
> > preface statements such as
> > the above with something on the lines of "At the
> > stage I've reached I can
> > still think ..." or even, in the case above, have
> > added - 'who have more
> > advanced PD' - between 'stutter' and 'cancer'.  As
> > it is Ms Reno has
> > portrayed PD as something less disabling than a
> > stutter, something which is
> > not even a 'difficulty'.  God only knows how many
> > months of profile and
> > awareness raising she has undone.   I would think
> > that the PD associations
> > in the US would be justified in protesting Ms Reno's
> > comments in as loud a
> > voice as they have the ability to use.
> >
> > Actually, a more productive approach would probably
> > be for the associations
> > to approach high profile PWP who take it upon
> > themselves to comment
> > misleadingly on PD and request that they appraise
> > themselves of the
> > realities of the situation before pronouncing on it.
> >
> > (Note: I am aware that later in the interview Ms
> > Reno acknowledges that she
> > will get worse and does use the words 'so far I
> > think i'm fortunate'.  Sadly
> > they are used after the damage is done).
> >
> > Dennis.
> > +++++++++++++++++++++++++++
> > Dennis Greene 49/dx 37/ onset 32
> > There's nothing wrong with me that a cure for PD
> > won't fix!
> > email - dennisg@xxxxxxxxxxxxxx
> > Website - 
> > +++++++++++++++++++++++++++
> >
>
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